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    Tips For Organizing All Your Medications and Supplements

    February 1, 2017 by Victoria Faling Leave a Comment

    I just posted a video on YouTube today with my top tips for organizing all the medications, supplements, tinctures, this, that, and the other that you might be taking if you have a chronic illness like Lyme disease.

    I hope you find some of these tips helpful and let me know in the comments your best tips for organizing!

    I've become a fan of YouTube in recent months and have been posting more Lyme related videos there while focusing on recipes on my blog. How are you all feeling about this? Do you miss posts about Lyme and treatment updates here? What format do you prefer (videos vs. writing)? I'll continue to use all social media platforms from Instagram to Facebook to YouTube and of course this blog, but it would be nice to know what you all like best :).

    My Lyme Disease Story 

    January 6, 2017 by Victoria Faling 6 Comments

    I just posted my Lyme Disease story on YouTube! I'm sorry it's so long, I even left parts out and started to rush at the end to get it all in and not make it a movie. BUT I've dealt with lyme most of my life so it's long... in the description box I did mention the times when I talk about certain issues and treatments if you're looking for something specific. 

    I get a lot of questions about my story, what I'm doing for treatment, what I've tried, did it work etc and so I wanted to be able to direct everyone to the video instead of typing it out all the time. I truly hope this video is helpful. 

    If you want me to make more specific videos on any treatment or protocols that I mentioned in this one, just let me know! 

    I so appreciate everyone's support through this crazy disease 💚

    My Favorite Detox Baths

    December 29, 2016 by Victoria Faling 2 Comments

    If you aren't subscribed to me on Youtube, you should be. I haven't been announcing here every time I post a video and if you don't want to miss one, head on over to my channel and click that red subscribe button!

    My Youtube is filled with tips and tricks for healing Lyme, some food stuff, and a few random videos for fun on occasion :).

    I posted this video a few weeks back but wanted to make sure you all saw it. Detox baths are one of my favorite ways to, well, detox, also to relax and even help kill Lyme!

    Caramelized Brussels Sprouts and Chestnuts with Butternut Squash (Paleo)

    December 7, 2016 by Victoria Faling Leave a Comment

    Brussels sprouts are one of my favorite vegetables. I love them combined with chestnuts! For several years, this pan roasted, caramelized brussels sprouts and chestnuts dish became a favorite on Thanksgiving. We hadn't made it in awhile because it contains sugar and a heck of a lot of oil (so unnecessary).

    This year, I decided I wanted to make some sort of butternut squash, brussels sprouts, and chestnuts dish. I was thinking about just roasting them all but then I remembered how good that old Sprouts&Chestnuts dish was and I knew I had to make a variation of that. A healthier one, of course.

    IMG_7545.JPG
    This was our Thanksgiving spread! The red bowl in the upper left corner is the b-nut, sprouts, and chestnuts dish.

    This is a great dish for holidays and get togethers, but also just to make for weekly food prep. It's so delicious, I could literally eat all of it in one sitting! It may be my all time favorite recipe.... at least when it comes to vegetables ;).

    The original recipe was from Gourmet Magazine, which isn't published anymore. This recipe is loosely based upon that recipe.

    img_7542

    Caramelized Brussels Sprouts and Chestnuts with Butternut Squash

    Serves 6-8

    Ingredients:

    3 lbs. butternut squash, peeled and cubed (about 2 cups once peeled and chopped)

    1 lbs. of brussels sprouts, trimmed and halved

    15 ounce jar of chestnuts, rinsed

    1 tbs. extra virgin olive oil

    1-2 tbs. coconut oil

    ¼ cup apple cider vinegar

    ¼-1/2 cup bone broth

    Salt to taste

    Preheat oven to 400F.

    Peel and chop your butternut squash. Lay out on a parchment lined baking sheet and drizzle with 1 tbs. of olive oil, a sprinkle of salt and mix. Roast for about 30 minutes, mixing half way through, until squash is soft and slightly golden.

    You can roast the squash ahead of time or WHILE the squash is roasting, prepare the sprouts and chestnuts.

    In a large saucepan, heat 1 tbs. of coconut oil until melted over medium heat. Add sprouts and season with salt. Cook, stirring occasionally, until golden, about 15-18 minutes. If sprouts begin to stick, you can either add the extra tbs. of coconut oil or small amounts of water to deglaze the pan.

    Add the chestnuts and combine. Cook for another 20-25 minutes, stirring occasionally, until sprouts and chestnuts are tender and browned in places.

    Raise heat to medium-high and add the ACV and ¼ cup of broth.Cook for about 5 minutes, stirring occasionally, until liquid reduces. Add in the butternut squash, mixing well. If things seem dry or are sticking to pan, add the extra ¼ cup bone broth. Cook everything together for another 5 minutes.

    Serve immediately or reheats well. Store leftovers in the fridge for up to 5 days.

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    Paleo Pumpkin Cheesecake with Graham Cracker Crust (AIP and Vegan option/Low Fodmap)

    November 30, 2016 by Victoria Faling Leave a Comment

    Dessert is my favorite part of Thanksgiving. Always has been, always will be. And it's always my responsibility. We (as in I) were going to make paleo pecan pie since we live in New Mexico after all (if you didn't know, they grow pecans here, so it's kind of a thing) and we've also never made pecan pie for Thanksgiving before, but last minute I decided on a pumpkin cheesecake because it's just not T-day without something pumpkin!

    We've been making variations of cheesecakes and pumpkin desserts for years now and something just felt off about making pecan pie instead. Perhaps we will save that one for Christmas ;). But, I couldn't let the idea of pecans slide from my mind, so I decorated this beautiful and delicious cheesecake with some!

    My recipe is based off of these two recipes: Grazed and Enthused's AIP Pumpkin Pie & Whole Life, Full Soul's AIP Pumpkin Cheesecake. My recipe is lower FODMAP and nightshade free. This recipe is not super sweet, which is what I love about it. It is quite earthy tasting. I suggest using a high quality pumpkin puree (perhaps even making your own) to get great flavor out of this dessert. You can add extra maple syrup to the filling (or drizzled on top) if you like things on the sweeter side. And it is excellent served with coconut whipped cream or coconut milk ice cream!

    Paleo and dairy free pumpkin cheesecake

    This allergy friendly pumpkin cheesecake is completely gluten-free, dairy-free, and paleo. You can keep it completely AIP by leaving off the pecans and it can easily be made vegan, as well. This dessert is sure to please the whole table!

    AIP pumpkin cheeseecake
    Print Pin

    AIP Pumpkin Cheesecake with Graham Cracker Crust

    This recipe requires extended chilling time, so please read the directions before beginning and allow at least 6 hours of chill time, preferably overnight. This delicious pumpkin cheesecake fits almost every diet, making it the perfect holiday recipe to please the entire table! Not only is this cheesecake gluten and dairy free, it is also completely AIP (leave off the pecans) and can easily be made vegan.
    Course Dessert
    Cuisine American
    Keyword dairy free, fall, holiday, thanksgiving
    Prep Time 30 minutes minutes
    Cook Time 30 minutes minutes
    Total Time 7 hours hours
    Servings 8 people
    Author Victoria Faling

    Ingredients

    Crust

    • 1 cup coconut flour or ½ cup coconut flour + ½ cup almond flour if not AIP
    • 2 tablespoon tapioca starch
    • 1 teaspoon ground cinnamon
    • ¼ cup melted coconut oil
    • 1 tablespoon maple syrup
    • 1 tablespoon molasses

    Filling

    • 1 can of pumpkin 15-ounce
    • 1 can full fat coconut milk 15-ounce
    • ¼ cup melted coconut butter
    • ¼ cup maple syrup
    • 1 tsp. vanilla extract
    • 1 tsp. ground cinnamon
    • ½ tsp. ground ginger
    • ¼ tsp. sea salt
    • 1.5 tablespoon Gelatin I use Great Lakes red can (use agar agar for vegan version)
    • 2 tablespoon boiling water
    • optional-pecans *leave pecans off the top to make autoimmune paleo protocol friendly

    Instructions

    • Preheat oven to 325 F.
    • Line a springform pan with parchment paper. I usually cut a circle for the bottom and then strips to line the sides.
    • Mix all dry crust ingredients together to remove any lumps. Add wet ingredients and mix until you have a sandy texture. The dough should hold together and be slightly crumbly, but not be super wet. If for any reason it is not holding together, add some hot water slowly.
    • Press the dough into the springform pan, spreading evenly along the bottom and up the sides about 1.5-2 inches. Pierce bottom of crust with a fork a couple of times.
    • Bake in the oven for 25-30 minutes, until deep golden brown and feels almost hard (it will harden once taken out of the oven).
    • While the crust is cooling, make the filling. Combine all the ingredients except for the gelatin and water in a food processor.
    • Add your gelatin and boiling water together in a small bowl and immediately whisk vigorously to combine. You need to be quick about this so that the gelatin doesn't harden and become chunky in the water. As soon as you've whisked it well, add it to the food processor and make sure everything is combined well. This mixture will be very runny/watery/soupy, do not fear!
    • Once your crust as cooled, rub your fingers over the areas you pierced with a fork (so that your filling doesn't run through). Then pour your filling into the crust and set in the fridge for a minimum of 6 hours but I suggest overnight. The gelatin will allow the filling to harden and set.
    • If you want to add pecans to the top: about 2 hours into chilling, take the pie out and press the pecans into the top of the cheesecake in your desired design. Return cheesecake to the fridge to finish setting.

    gluten free and dairy free allergy friendly pumpkin cheesecake

    Pumpkin Seed-Sage Butternut Squash (Paleo/Vegan)

    November 16, 2016 by Victoria Faling Leave a Comment

    I love Thanksgiving because it's the one day of the year were it is socially acceptable to eat a lot of delicious food. And who doesn't love that? Plus, in my household, Thanksgiving is our favorite because we love cooking! My mom and I put together a unique and delicious meal every year. We always make everything from scratch (I mean everything). As my dietary needs have changed over the years, we cook to accommodate and that makes it all the more fun. I always love a challenge in the kitchen.

    Anyway, butternut squash is not only a classic winter staple but a must as some part of the Thanksgiving meal. So here is SIMPLE butternut squash recipe that no one will be able to resist when you are sitting around the table on Thanksgiving. You can easily sub out pumpkin in this dish, but I promise butternut squash gives you the perfect sweetness needed in this recipe.

    paleo and vegan allergy friendly butternut squash with pumpkin seeds

    allergy friendly paleo and pumpkin seed butternut squash
    paleo and vegan allergy friendly butternut squash with pumpkin seeds
    Print Pin

    Pumpkin Seed-Sage Butternut Squash

    This is a delicious and easy side dish that is perfect for part of a holiday meal or just a weeknight dinner!
    Course Side Dish
    Cuisine American
    Keyword Easy, fall, Simple, winter
    Servings 4 servings
    Author Victoria Faling

    Ingredients

    • 1 large butternut squash peeled and chopped into cubes
    • 2 tablespoon extra virgin olive oil
    • 8 fresh sage leaves finely chopped
    • ¼ cup pumpkin seeds

    Instructions

    • Preheat oven to 425F.
    • Mix butternut squash and sage leaves with the olive oil and spread onto a parchment lined baking sheet. Bake for 30 min.
    • Remove from oven and mix in the pumpkin seeds. Bake for another 10-20 minutes until butternut squash is easily pierced with a fork and pumpkin seeds and sage are fragrant and golden.
    paleo and vegan allergy friendly butternut squash with pumpkin seeds
    allergy friendly paleo and pumpkin seed butternut squash
    paleo and vegan allergy friendly butternut squash with pumpkin seeds
    allergy friendly paleo and pumpkin seed butternut squash

    Paleo Coconut Chicken Skewers (AIP, Low Fodmap, Nightshade Free)

    November 3, 2016 by Victoria Faling Leave a Comment

    These delicious chicken skewers are marinated in robust herbs like ginger and turmeric for anti-inflammatory benefits and gut health. Filled with flavor, this allergy friendly chicken dish is completely AIP, dairy free, and nightshade free. You truly can enjoy delicious food while healing your body!

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    This recipe was inspired by Living Loving Paleo's Chicken Satay recipe. I just modified it to fit my dietary restrictions.

    To make this chicken satay, you'll marinate chicken in a blend of coconut milk and delicious spices for several hours. When ready to cook, you can use your oven (no fancy grills or air fryers needed). It's a very simple chicken recipe that still packs a flavor punch.

    How to Serve

    I love serving these chicken skewers over a bed of greens which fresh chopped veggies like cucumber and tomatoes. They also pair perfectly with rice and a side salad. This recipe is a great meal prep recipe so you have a protein prepped to add to lunches or dinners.

    paleo chicken skewers
    Print Pin

    Coconut Chicken Satay

    These delicious chicken skewers are marinated in robust spices and creamy coconut milk. Completely gluten free and dairy free, you can enjoy chicken in an exciting way that is also allergy friendly!
    Course Main Course
    Keyword allergy friendly, chicken, dairy free, gluten free, healthy
    Servings 4 servings
    Author Victoria Faling

    Ingredients

    • 1 lbs chicken breasts pounded to about ¼-1/2 inch thick
    • ½ cup full fat coconut milk
    • 2 heaping Tbsp cilantro chopped
    • 2 teaspoon fresh grated ginger root
    • ½ teaspoon turmeric
    • ¼ teaspoon saffron
    • ½ teaspoon sea salt
    • Skewers metal or wooden

    Instructions

    • Mix all ingredients together in a plastic bag and marinate the chicken for 2-12 hours in the fridge.
    • If you are using wooden skewers, about 30-60 minutes before you are ready to cook the chicken, soak the skewers in water.
    • Preheat oven to 350 F. Line a baking sheet with aluminum foil and place a wire cooling rack on top. Weave chicken onto skewers and place on the wire rack.
    • Bake for 25-30 minutes, until chicken is almost done. Broil on high for about 5-10 minutes until chicken is done.
    • I enjoy eating this over a salad but you can make any type of peanut sauce to go with it, as well.

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    Guest Post: Advice for the Newly Diagnosed Lyme Disease Patient

    June 1, 2016 by Victoria Faling 2 Comments

    I'm really excited today to be sharing a guest post by Kerry from Body, Mind, Lyme. Kerry was diagnosed with two autoimmune disease before finally figuring out the root cause- Lyme disease. Today she is sharing some tips for those recently diagnosed with Lyme and how to handle the diagnosis.

    Although both of us have been dealing with health issues for quite some time and many of you reading this have also been dealing with Lyme for awhile, Kerry's advice still applies. I know I get many newly diagnosed with Lyme reading my blog, as well, so here is some great advice for everyone! Let me know in the comments what you wish you would have known when you were first diagnosed. And don't forget to head on over and check out Body, Mind, Lyme!

    _________________________________________________________________

    Advice for the Newly Diagnosed Lyme Disease Patient 

    Man with Flashlight.jpg

    I suppose the silver lining of a chronic Lyme disease diagnosis is that you have a diagnosis. So many of our ranks suffered for years with no answers. I know the sense of relief I felt when I finally knew what was wrong.

    But that is just the first step. Now you must venture into the strange maze of chronic Lyme disease treatment. Here are a few things I wish I’d know when I asked the doctor, “So, you’re sure this is it?” and she confidently and reassuringly said, “yes.”

    1. You are not alone. 

    It is scary to receive a diagnosis of a “rare” disease, but Lyme disease is not rare. There are 300,000 new cases recognized by the CDC each year, and some estimate a much higher number that go unrecognized or unreported. In my small circle I know 2 other people who have been diagnosed with Lyme. Once you start telling people about your diagnosis you will start hearing the stories, “my cousin has that,” “my uncle’s sister’s best friend’s niece has that.”

    Aside from connecting with people who are 2nd and 3rd degrees of separation, I would strongly suggest tapping into the vast Lyme community on the internet.

    The first place I looked was on Facebook and I joined a closed group for female Lyme disease patients all over the world and a regional closed group for people in Illinois (where I live) to share resources and ask questions. Then, I tapped into the blog world looking for posts from people who have had similar experiences to mine. Finally, I started my own blog to connect with other bloggers and Lyme patients with the goal of being a positive place for Lyme patients to stumble upon, like I did with so many other blogs, including Lemons ‘N Lyme.

    There are countless blogs and social media feeds related to Lyme disease. I would suggest finding a few that share your attitude and approach to illness. I follow blogs and social media feeds that focus on positivity and a modified diet. Some people may want to follow blogs with a focus on research or a certain treatment protocol. The good thing is whatever you are looking for, you will find it.

    I truly don’t know how Lyme patients diagnosed over 10 years ago coped with this illness without the internet.

    If possible I would also recommend talking to Lyme patients face-to-face. I eventually joined a Lyme disease support group and have found it to be extremely helpful. If there isn’t a support group in your area, I would suggest having coffee with another Lyme patient who lives close by. If you live in a small area and are unable to find any other Lyme patients near you there is the option of Skype or continuing to form connections online.

    The good people of the chronic Lyme disease community are a wealth of support and information. We have to be, because besides some medical professionals, we are all that we've got.

    2. It gets worse and then it gets better (and then it gets worse, better, worse). 

    Now that you and your doctor have decided on a treatment plan, it is time for the roller coaster ride of Lyme recovery. I often describe the Lyme treatment process like an upward moving roller coaster. There are rises and falls, but slowly you will be making upward progress. It just doesn’t always feel that way.

    I’ve found that on my bad days I can’t remember how I felt on my good days and on my good days I can’t remember how I felt on my bad days.

    You’ve likely read up on Herxheimer reactions and if you haven’t here is a good post. You could feel better for weeks, then have a huge herx reaction as the bacteria die off and leave your body.

    My doctor has a good strategy for showing me that things are slowly getting better. She documented all the symptoms I brought to her on our first visit (debilitating pain, headaches, dizziness, blurry vision, etc.) and each visit she asks if I still have those symptoms. Most are better, if not gone. I still feel sick, but she helps me see the progress.

    This is a strategy you could do with your doctor or on your own. Write down all your symptoms and return to the list once a month to add new symptoms and track progress on your old symptoms.

    3. Your treatment will not be like anyone else’s treatment. 

    Dr. Richard Horowitz calls Lyme disease Multi Systemic Infectious Disease Syndrome or MSIDS. That is because Lyme usually comes with multiple coinfections (including parasitic and viral) and attacks multiple systems in your body. So depending on which coinfections you have and which systems they are going after you are going to present differently than any other Lyme patient.

    There are common symptoms across most Lyme patients, like fatigue, brain fog, and pain, but there are hundreds of other ways the disease can manifest.

    Other things that will affect your treatment plan are: autoimmune responses (such as Hashimoto’s Thyroiditis), food intolerances (gluten, dairy, etc.), gene mutations (MTHFR), and vitamin/mineral deficiencies (anemia).

    When you look at the above list it is pretty clear why no treatment plans look alike.

    Usually they include antibiotics and/or antimicrobials, supplements, and lifestyle changes, but it will always be a variation.

    4. There is no right treatment, there is only the right treatment for you. 

    In my first suggestion I tell you to tap into the Lyme community on the internet. In this suggestion, I’m going to tell you to take it with a grain of salt.

    I tend to skip over any Facebook post that contains any negativity or controversial discussion. There are people who will say never take antibiotics and there are people who say antibiotics are the only thing that worked for them.

    It is very difficult to land on a treatment that you are comfortable with. When I was undiagnosed, I said no to many different medications, including antibiotics. At the time, I just wasn’t comfortable with that particular treatment. I feel like at this stage of my disease I am on the right treatment for me, so I tend to take with a grain of salt advice on what to take or not take. I’m always open to a new approach, but it has to be something I am comfortable with or it will end up doing more harm than good.

    5. There is hope. 

    Lyme disease is a devastating diagnosis and will surely have many days where it feels like an impossible climb.

    When you are feeling like you will never get better, go online and read one or two stories of recovery.

    I’m 75% better than when I began treatment and I still have moments where I break down and cry. In these moments I use advice I heard on The Oprah Winfrey Show many years ago. There was a guest who had been hit by a drunk driver and had severe, disfiguring burns covering most of her body. She told Oprah that she allows herself 5 minutes a day to cry and after that she gets up and keep going. When I break down, I let it all out, then I get back up and keep going.

    It’s all we can do.

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    If we can figure out how to fly above the clouds over the middle of the ocean, we can heal

     

    All Natural Home Part 1: Hygiene Care

    May 18, 2016 by Victoria Faling Leave a Comment

    I've been wanting to do a series on how to keep your life "natural" aka non-toxic. So, I'm finally going to be doing a 3-part series on the products I use in my home and on me to maintain a non-toxic (or lower-toxic) life/environment.

    Part 1: Hygiene/Body care- all the basics from soap to shampoo

    Part 2: Household products- how to make cleaning products at home without the toxic load and how I lower my exposure to toxins from things like tap water

    Part 3: Beauty- My tips and tricks for non-toxic make up, hair spray, and more.

    This series will be spread over the next few months. So let's get started with part 1 today! Not all of the products I use are the absolute cleanest, but I have to balance cost with toxic-load. Therefore, I try and find the cleanest products I can within my budget. I also like to make a lot of my own products but sometimes that can be more of a hassle, so I want to show you what you can find in the store. I'm sharing those products with you today and I hope you find it useful if you are also on a budget. All products are $10 or under.

    Body:

    1. Face Lotion: I have extremely sensitive skin and for a very long time I could only use one, very toxic, face lotion without breaking out. I finally found a brand I like that is less toxic AND gluten-free! This isn't 100% the cleanest product on the market but it's pretty good, free of some of the worst offenders, and my skin handles it alright.

    IMG_3901

    2. Body wash: Again, sensitive skin Sally here! I needed something that would minimize break outs, keep my skin from drying out, and get me clean. I like how simple this product is and it smells amazing! My favorite flavor is the tangerine or the vanilla.

    IMG_3904

    3. Body Lotion: This product does the trick but another favorite for me is straight up coconut oil! Coconut oil can feel a little greasy until it soaks in and sometimes you don't have the time to wait, so using a body lotion can be easier. Coconut oil can also clog pores and since my skin is very sensitive, it isn't always the best option for me. This one is pretty clean and seems to hydrate my skin well (another problem I have- very dry skin).

    IMG_3907

    4. Deodorant: The deodorant I use is made locally here in Santa Fe so I'm not going to share that brand (but for all of my Lymie Santa Feans, it's the one sold at my doctors office ;)). I suggest making your own unless you have an awesome apothecary near by and they make deodorant (cough FORT COLLINS I LOVE YOU cough). Pretty much all deodorants in the store are filled with nasty chemicals that you shouldn't been putting on your skin, especially directly on top of your lymph nodes. There are a few brands out there that you can get your hands on in the big grocery stores sometimes, though, like this one

    IMG_3906

    Hair:

    1. Shampoo: This isn't my favorite shampoo but it was on sale (2 for 1!) last month so I had to take advantage of it. I've struggled to find a non-toxic shampoo that actually works and isn't a thousand dollars (I have hair that is SUPER greasy on top and SUPER dry on the bottom and is on the thinner side). If you have any suggestions shoot 'em at me! But, this stuff still does the trick and I found my hair has been better since I've worked to not shampoo every day and installed a shower filter. The water really does make all the difference. More on that in a later post 😉

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    2. Conditioner: I'm pretty nonchalant about conditioner. If it's non-toxic, I'll take it. Conditioner is conditioner to me. This was another 2 for 1 deal. Again, any conditioner suggestions send them my way.

    IMG_3902

    3. Coconut oil: 1-2x/week I smother the ends of my hair in coconut oil, tie it up in a bun, and chill out for 30-60 minutes before washing the oil out. This helps protect my hair, add pack in some moisture (I do live in the desert), and keep it shiny and soft. Basically it's a non-toxic deep conditioning treatment for your hair! You can feel free to really massage it into your scalp and whole head of hair if you have dry hair or dandruff. My scalp is quite oily so I avoid that and only put the oil on my ends.

    Mouth:

    1. Toothpaste: There are a handful of good toothpastes on the market these days. Yes, you can very easily make your own but sometimes you just don't want to deal with the hassle of that. Whenever I buy toothpaste, I look out for fluoride, gums, and sugars on the ingredients label. I've always loved Dr. Bronner's products (so clean!) so I was quite excited when they came out with a toothpaste. I've tried a lot of natural toothpastes and this is by far my favorite one.

    IMG_3905.jpg

    2. Coconut oil: I use coconut oil for oil pulling, an all-natural method for keeping your teeth and gums clean and healthy! I plan to do a separate post or YouTube video about it but for now you can click on that link to learn more. Have you figured out yet that coconut oil is the miracle product?! If I was stuck on a desert island I'd want a roll of duct tape and a jar of coconut oil!

    I hope this gives you all some ideas if you are struggling to transition your products from toxic to non-toxic ones.

    Stay tuned for parts 2 and 3! What are your favorite toxin-free products for staying clean? Are you sensitive like me?

    Treatment Update: April/May 2016

    May 2, 2016 by Victoria Faling 12 Comments

    It's about that time again. Time for a treatment update. I actually don't believe I ever did an update when my IV's changed in January but we will discuss that in a moment. I figured this would be the perfect time for a treatment update not only because my treatment has changed, but also because May is Lyme Disease Awareness Month.

    Before we get into the treatment, I'd like to quickly provide 5 "fun" facts about Lyme in honor of May being what it is.

    5 facts about Lyme that you should know:

    1. Less than 50% of Lyme cases present with the typical bulls eye rash

    2. The standard Quest lab test (western blot and Elisa) only test for one strain of Lyme while there are 100s all over the world, 12 of which are currently known to cause Lyme (no wonder so many test negative for Lyme!) 3. Lyme is more epidemic than AIDS, west Nile, and avian flu combined

    4. Annual cases of Lyme disease far exceed the number of new cases of breast cancer each year

    5. You can contract Lyme disease from almost any insect that bites, from spiders to horse flys, NOT JUST ticks .

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    As many of you may already know, mid December-end of March, I was completing weekly IV's, about 3 IV's a week. And they were seriously kicking my a**! I felt miserable and come April, I knew I needed a break.

    I don't think the IV's were necessarily a bad thing, I think they were just doing their job REALLY well and it was a lot for my body to handle. I reached a point where I couldn't take it anymore and I had to back off. I was completing a mix of hydrogen peroxide, vitamin C, and ALA IV's along with Argentyn 23 (silver) and glutathione pushes. Mind you, at baby doses of them all. Man, I'm a wimp.... or at least my body is. My doctor even took the time to make fun of me on occasion ;).

    Surprisingly, I felt like vitamin C was kicking my ass the most. How odd? The one IV that was supposed to be the most nourishing made me feel like I had been hit by a bus. Have any of you experienced that? Any thoughts on why vit C, of all things, would make me feel that way? I mean, not to say that h202 wasn't also kicking my butt.

    IMG_3191

    Throughout all of that, I, of course, continued my detoxing regimen and will continue to do so until the day I die (maybe just at a lighter load in the future... well, definitely hopefully!).  So let's move on to what I'm doing currently.

    We decided to put a break on IV's for April and May, until I seem my doctor again at the end of May. Instead, I've been completing:

    1. 2 ozone sauna's a week with the goal of staying in them for 30 minutes to get as much ozone into me as possible. I'm big on the ozone right now, but due to the fact that my blood could win an Oscar for clotting skills, I can't do ozone IV's at the moment. I'm trying to make up for it my getting ozone into my body every other way possible.
    2. Ozone insuflation... in every hole south of my mouth (Hey, I know ya'll like when I'm honest). Like I said, gimme all the ozone!
    3. All the usual supplements. I am not taking any tinctures or supps designed to kill or break biofilms, just your usual dietary supplements and the prescription medications I "need."
    4. All my usual detoxing.
    5. I just began seeing a Chinese Medicine doctor who works with my main LLMD. She is going to be addressing food allergy/intolerance issues using the NAET technique. I also will be completing some more testing and muscle testing with her to determine what else may be going on or what the biggest problem is (mold? parasites? Lyme? What is the first layer of the onion that needs to be addressed to get to the other layers?). I'll keep you posted on how those appointments go, I just saw her for the first time last week.
    6. I also have been working hard on the emotional aspect of Lyme and treatment. This includes seeing a therapist (I have a great one who also has been through the Lyme tornado) and completing a session of Family Constellation therapy, which I hope to continue in the future if finances permit.
    7. I am still doing bee venom therapy but I have dropped down to once a week.
    8. I added in Cranial-Sacral therapy once a week. Although I can't say I've noticed anything from it yet, I feel something there and my therapist is fantastic. I'm excited to keep working with her.
    9. Per usual, I'm working hard to try and keep my diet in check. DANG, is that hard when you feel like crap with no energy to cook and the sugar cravings are on high.

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    Ozone Sauna

    So, that's the gist of it. Still working hard to get my life back. And to be honest, the life I had when I was 7 years old. That's the energy and happiness I want back. What a puzzle Lyme is, am I right?! I feel like we are missing one tiny thing and once I figure out exactly what that is, everything else will fall into place. Fingers crossed.

     

    I wanted to share a video I made about a day in my life. I posted it on my YouTube channel and I share what a day in the life of someone with Lyme disease, who is treating holistically and alternatively, looks like:

     

    How are you all feeling? What treatments are you doing? What have you found works for you? How do you keep your diet on track when you aren't feeling well? Let me know, I love reading comments and hearing from all you wonderful people!

     

    Treatment Update 12/15

    December 7, 2015 by Victoria Faling 11 Comments

    How often would you all like a treatment update? I do it pretty spontaneously, mostly based on major changes in treatment or how I'm feeling. But I can happily do it once a month if you'd be interested in keeping up with my progress more often and in a more official manner. Just let me know in the comments what you would like!

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    This past month has been pretty rough. At the end of October I made a week long trip back to DC for a grad school interview and to see old friends. That seemed to set of a series of events upon returning to Santa Fe. I felt very run down by the end of my trip (for obvious reasons) but couldn't quite seem to recover like I normally do after a few days of intense detoxing. A week after my return to NM, I came down with what I believe was the flu. Let me tell you, real people sick IS NOT FUN! I haven't had the flu since I was a kid…. I'm not sure where or how I got it (I'm assuming from traveling) but, it sucked. I managed to sleep it off, get some ear ozone to speed up the healing process, and get through it fairly quickly. It seemed to linger after that, though.

    Also, if you didn't know, I got a port-a-cath placed. It took 3 attempts to finally get to the clinic to do it. Try 1: I requested a specific doctor and when I got there it was not him. So I refused the surgery and rescheduled. Try 2: I had the flu and surgery+fever does not mix. Try 3: WIN! The day before Thanksgiving, a week after the flu, I drove down to Albuquerque, had my surgery with the best of the best, and came home to recover with a big, yummy Thanksgiving meal the next day.

    But, alas, nothing is easy with me. I had an allergic reaction to Chlorhexidine, the antiseptic they use to clean your skin before surgery and before any port access. My chest and neck were covered in a very red, very itchy rash (which you can see the remains of in the pictures below). I had to pause treatment for a moment to let it heal. I've healed. We're good. Don't worry. I get the special cleaning cream now.

    THEN, this past Friday I couldn't stop throwing up. I couldn't keep anything down, not even a sip of water. Luckily my doctor and nurses are amazing, got me in for fluids and anti-neasua meds, and made me feel SO much better.

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    The magnesium in my fluid drip made me so hot they had to cover me in ice packs

    Woah woah woah let's back up a few steps. In a previous post I mentioned that I stopped LDI treatment. Yes, I stopped it. It wasn't working for me and it just seemed pointless to keep going, at least for right now. Different treatments work for different people so it's possible LDI just wasn't for me. Dr. Vincent also says that if you are doing LDI, to stop all other killing protocols. Well, I was still on other treatment protocols. Lots of factors here, folks. But we had to make the decision we thought was best for me.

    And now only backing up a couple of steps. I GOT A PORT! WHAT?! Yes, I have this little thing in my chest that leads to my heart and makes my IV's so much easier! It's like a picc line in your chest. So, what do I use it for?

    Current Treatment Protocol:

    2x/week ozone therapy and glutathione push (soon to add in phosphytidal choline push)

    2x/week bee venom therapy

    2x/month therapy to work on the mental aspect of Lyme

    the usual round of supplements (leave a comment below if you'd like to see my current pill regimen)

    Herbals: Japanese knottwood, ABAB by Byron White, Biocidin for biofilm busting

    My usual detoxing

    We may eventually be adding to my IV protocol (actually, probably, will be) but we have to ease in and see how things are working, first. Now that I have this port I'll be able to do some IV's at home which makes it cheaper and easier.

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    How am I feeling? No different. As you saw, it was a rough month. Who knows if I had a few different bugs/viruses that were working their way through my system or if I've been herxing a lot from the new rounds of treatment (including ozone and finally having worked up to a full bee appointment). All I can do is keep pushing and see what happens next.

    I hope everyone is doing well or at least hanging in there and you've all had a cheerful start to the holiday season.

    As always, sending my love and healing to each and every one of you!

    Kale and Persimmon Salad

    December 2, 2015 by Victoria Faling 1 Comment

    This Kale and Persimmon Salad is a simple, but delicious holiday salad. It highlights one of my favorite seasonal fruits and is a fully gluten free and dairy free recipe.

    healthy kale and persimmon salad
    healthy kale and persimmon salad

    This Kale and Persimmon Salad is a family favorite for Thanksgiving. If you’ve never had a persimmon, you need to try one! They are absolutely delicious, but you can only find them a few months out of the year. Persimmons are sweet with just a little tang.

    This salad is very easy to make. You combine everything in a bowl, mix the dressing, and serve. The dressing is a simple honey-mustard type dressing with a little bit of tang from apple cider vinegar.

    What kind of persimmons to use?

    I recommend Fuyu persimmons in general and for this recipe. You want to use ripe persimmons, so they don't leave your tongue feeling fuzzy.

    What to add to this kale and persimmon salad

    This is a simple salad, so the added cranberries and pumpkin seeds are important for making this salad less boring. If you can't have pumpkin seeds, you could try another nut or seed, but I can't speak to the flavor. The pumpkin seeds pair perfectly with the other flavors in this recipe. If you do try something different, leave a comment and let me know how it went!

    If you don't like cranberries, dried cherries would also be a lovely option in this kale salad.

    More holiday side dishes

    Sage Roasted Butternut Squash with Chickpeas

    Cinnamon and Ginger Roasted Rainbow Carrots

    Brussels Sprout Salad with Apples and Chickpeas

    Corn Free Sweet Potato Cornbread

    gluten free and dairy free kale and persimmon salad
    Print Pin

    Kale and Persimmon Salad

    This simple salad is a Thanksgiving favorite in our American household. It's a lovely fall salad that takes advantage of the short persimmon season. The sweetness of the persimmons is complimented by the more acidic dressing.
    Course Side Dish
    Cuisine American
    Keyword Easy, fall, Simple, thanksgiving
    Servings 6 people

    Ingredients

    Salad

    • ½ bunch of green kale
    • ½ bunch of red kale
    • ½ head of butter lettuce
    • 2-3 persimmons, thinly sliced
    • 1 small red onion, diced
    • ¼ cup dried cranberries fruit juice sweetened
    • ¼ cup pumpkin seeds

    Dressing

    • 2 tablespoon apple cider vinegar
    • ¼ cup olive oil
    • 2 teaspoon dijon mustard
    • 2 tablespoon full fat coconut milk
    • 1 tablespoon honey

    Instructions

    • Wash and dry your lettuce. Pull the kale off the stems and chop/tear into bite size pieces. Place your kale in your salad bowl and sprinkle with salt. Massage your kale until the greens begin to darken and soften.
    • Tear/chop your butter lettuce into bite size pieces and add to the kale. Add the remaining salad ingredients to the bowl.
    • Combine all your dressing ingredients in a small bowl and whisk until thoroughly combined.
    • Taste and adjust, sometimes you need a little more mustard or honey
    • Pour dressing over salad and toss well.

    Our Thanksgiving + Raw Vegan Caramel Apple Cheesecake

    November 27, 2015 by Victoria Faling 5 Comments

    Well, I had planned on getting a few recipes posted BEFORE Thanksgiving. Then I got the flu. And we all know how that goes. So I apologize. But today I'll be sharing the delicious meal my family ate on Thanksgiving and the recipe for the delicious dessert we had.

    I hope you all had a wonderful Thanksgiving… well, to all my American followers. Otherwise, I hope you had a great Thursday ;).

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    I realize there is a giant turkey in the middle of this table. I might be vegan, but my family is not. Don't worry, I didn't touch it.

    The Menu: (recipes from other sites are linked)

    New Mexican Red Chile Turkey

    Pumpkin Risotto (To die for!)

    Cornbread Stuffing

    Cranberry, Fig, and Pistachio Relish (the best cranberry sauce ever!)

    Kale and Persimmon salad (recipe coming soon)

    Roasted Butternut Squash, Brussels Sprouts, and Apples (This was supposed to be a stuffing, but I left out the bread and broth and it came out amazing)

    Roasted Beets with an Orange-Anise Glaze (from Thrive magazine)

    Raw Vegan Caramel Apple Cheesecake (recipe below) (Also to die for!)

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    Now let's get on to the best part of the meal, DESSERT!

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    Raw Vegan Caramel Apple Cheesecake

    Serves 6-8

    *Be sure to read full recipe before beginning to make this cake as it does need to be made ahead. It's very easy but requires some setting.

    Crust:

    ½ cup sprouted and dehydrated buckwheat*

    ¼ cup sprouted almonds

    ¼ cup sprouted walnuts

    ½ cup shredded coconut

    ½ cup dates, soaked

    3 tbs. dried chopped apple

    ½ tsp. cinnamon

    1 tsp. vanilla extract

    Pinch of salt

    *You can just buy buckwheat groats from the store, soak overnight and then dehydrate in your dehydrator or in the oven at a low temperature for several hours. If you don't care about being fully raw, you can soak them and then dry them in the oven at 250F for about 30-45 minutes.

    Combine the first 4 ingredients in the food processor and process until beginning to break down. Add the remaining ingredients and process until  a dough-like consistency forms.

    Press the dough into the bottom of a springform pan and up the side by ½ inch. I line the pan with parchment paper, but that is optional.

    Place crust in the freezer while you make the filling.

    Filling:

    2 cups of cashews, soaked for at least 4 hours

    ½ cup coconut cream from the top of a can of full fat coconut milk that has been refrigerated

    2 gala apples, peeled

    1 tbs. lemon juice

    1 vanilla bean

    ¼ cup maple syrup

    4 tbs. coconut oil

    1 tsp. cinnamon

    Process your cashews first (in food processor or high speed blender) until the break down and begin to smooth out. Add the remaining ingredients and process until completely smooth and creamy. Taste test. Of course.

    Remove crust from freezer and pour the filling on top. Smooth out. Return to freezer for at least 2 hours. You can make this ahead and keep in the freezer until the day of. Let thaw in refrigerator for 2-4 hours before making the topping and serving.

    Topping:

    1 fresh apple (gala, honey crisp, or pink lady)

    ¼ cup dried apple (if freeze dried, soak in warm water first to soften)

    Chop all apple into bite size pieces.

    If you don't mind it being not 100% raw, you can sauté the apples in a little coconut oil until soft.

    Caramel:

    ½ cup dates, soaked

    1 tbs. maple syrup

    1 heaping tbs. almond butter

    1 tsp. vanilla extract

    Pinch of salt

    2-4 tbs. coconut cream from the top of the coconut milk can

    ¼ cup water

    Combine all caramel ingredients in food processor using only 2 tbs of the coconut cream to start and NONE of the water. Process until smooth and silky. You'll want to taste at this point and see if it is the caramel flavor you desire. Adding more coconut milk increases silkiness.

    You want your caramel to be a pourable consistency (not thick), add water slowly as necessary to reach desired consistency.

    GET YOUR CHEESECAKE OUT! Remove the springform bottom from the edges and place cake on a serving dish (with bottom still attached). Decorate the top with your apple pieces and then using a spoon, pastry bag, or plastic bag with a hole cut out, drizzle the caramel over the top.

    I apologize for my messy presentation, we all just wanted to eat it last night! 🙂

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    Again, I hope you all have had a wonderful holiday and are enjoying your post T-day bellies ;). The holiday season has officially begun!

     

     

    LDI Update: August

    September 1, 2015 by Victoria Faling 28 Comments

    Okay, this is going to be an overall treatment update along with an LDI update. But first, I want to give a huge shout out to all of my amazing Lyme friends. Seriously, I wouldn't be able to get through the hard days (or any of the days) without all of you. It's absolutely impossible to understand what someone with a chronic illness is going through unless you have one, too. Meeting other people who struggle with the same issues as I do has been beyond helpful. I know I can count on you all when sh*t hits the fan and I need to vent or need reassurance I'm going to survive (seriously). It's beyond helpful to just have someone to listen. SO, THANK YOU A MILLION TIMES OVER! <3

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    I took my latest lDI dose on Tuesday 8/25, 11c. I didn't choose the best time to take it as I took it the same week as a full moon (8/29). DUMB! My symptoms always pick up a few days before a full moon but I also believe I flared a bit from the LDI.

    If you all recall, at the end of May/beginning of June I did a series of LDI doses. I started at 15c and every week after that I did 1c lower until I hit a dose that made me feel good. I took 11c right after a week vacation in California and I felt pretty good the next day. I wasn't sure if it was the LDI or if it was just me feeling rejuvenated post-vacay. So the following week I took 10c, just to find out. Well, that made me flare! I was exhausted. So we decided 11c it was.

    I've waited the 8 weeks and just repeated that 11c BUT we increased the amount of antigen in the formula. This may sound confusing. It was the same c (strength) but stronger antigen AKA less "filler" in the formula and more of the 11c in the dose. This may be what caused my flare from this round.

    A flare for me has meant being even more tired then usual (really, is that possible?! Apparently), trouble falling asleep (ugh really? BUT I'M TIRED!), headaches, tummy troubles (also, is that possible, my stomach is already a mess?!), increased anxiety, and just feeling off.

    We will see what my doctor has to say when I go to see him in 2 weeks. As always, I will keep you all posted. I get a lot of emails about how LDI is going and if I've seen improvements. Honestly, I haven't seen improvements form the LDI…yet. LDI is a process. I know all of Lyme treatment is a process but LDI takes time to figure out dosing and once you do it takes many doses to feel improvements. So, there won't be a quick or easy answer and you all will have to bear with me through this process :).

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    I've also begun bee venom therapy in the past month. I had a pretty strong reaction to it so instead of going full on we have to desensitize me. This means starting with just one bee, doing taps, and building up slowly. Once I am able to handle tapping from about 10 bees, I'll be able to do set-ins, and then full stings.

    Bee venom has an amazing amount of antibiotic, anti-inflammatory, and healing properties. It is one of the only things that can get inside (in-between) cell membranes where the Lyme hides. BVT can be healing in a number of chronic illnesses from MS to arthritis to Lyme and beyond.

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    Last but not least, I have also added procaine injections into my regimen. That's right, I get to give myself nightly injections. Procaine is supposed to help calm and reset my overactive nervous system. I am doing the injections in my abdominal area in an effort to get my digestive system to relax. I'm not sure anything will ever help my digestive system (unless I can get a transplant!) but I'll keep trying.

    If you have any questions about the treatments I'm doing, feel free to leave a comment or contact me!

    Why I Call Myself a Lymie

    August 13, 2015 by Victoria Faling 10 Comments

    There is a divide within the "Lyme world." There are those who refuse to associate with Lyme, call themselves a Lymie, or define themselves by there illness. Then there are those who 100% define themselves by their disease and would consider nothing else then to be called a Lymie.

    I understand both sides. When you are so sick you can't even lift your arm because of the pain, you feel so incredibly lost that you don't know what else to associate yourself with other then your disease. I think some people are just more positive about the whole situation or they have many other things to associate themselves with or they have an amazing support system or they've been lucky enough to where they haven't truly suffered. Whatever the case may be, I get it.

    I call myself a Lymie but I fall somewhere in between the two extremes (as many do). So why do I associate with my illness? Because it IS part of me. At least for right now. It doesn't define me but it sure as hell feels like it tries to. I associate with this illness because I feel an obligation to. What I mean by that is this community of Lyme-fighters 110% needs advocates in the world. How many people and doctors don't believe in chronic Lyme disease? How many sick patients are out there without a proper diagnosis? How many of us who ARE diagnosed are STILL suffering? I define myself as a Lymie to make a point. To let the world know I have suffered, I am suffering, and I will continue to suffer until progress in the medical community is made. I do it to let the world know there are 100's of others just like me, worse then me, SCREAMING for help and relief and progress.

    I spent years in pain and sick, searching for a diagnosis. So yes, I am a Lymie, a Lyme-warrior, a Lyme-fighter. I want the world to know how hard I have fought the system to get a proper diagnosis, to get my health back. I want the world to know how much of a battle this disease is BECAUSE of how abused and corrupted our medical system has become. I want people to know how much I've suffered. Not because I want pity, but because I want people to understand how much this "easy to treat and hard to get" disease can take from your life!

    I don't call myself a Lymie to make people feel sorry for me or to feel sorry for myself or to drag myself into the depths of this disease (although sometimes I go there, don't we all?). I do it to make a point. To bring awareness. To support others in this battle. I've put up one hell of a fight to get where I am today and I want everyone (especially the medical community and insurance world) to know that. To know how brave people with Lyme actually are. I want to be the face, the voice, the advocate for those who can't work, who are bedridden, who have lost friends and family because of this illness. Lyme isn't a joke and it can't be treated with just 2-4 weeks of doxycycline.

    Do you call yourself a veteran because that's all you associate with? That's all you are? No, you do it because it's a huge part of your life. You fought a giant battle and you probably have scars or medals or insane stories to show for it. We honor you for your bravery. Well, I fought a damn huge battle myself. Against my own body. Want to see the scars? Or hear the stories? I have them. You can call me a veteran if you want, I've been brave enough to keep fighting this battle every single day and to keep myself alive through it all. Lyme disease is a large part of my life, every day revolves around treatment and pills and how I feel. It doesn't define me but it IS a huge part of who I am, how I've gotten to where I am today, and what I've learned.

    I'm not saying you should fall into the trap of your disease or only associate with the negatives in your life, but if you have a chronic illness, it is part of who you are. It's okay to connect with it, to identify with it. Sometimes that can make it easier to understand and live with, rather then trying to continually push it away and make it this foreign, frustrating thing that has taken you over. Accepting your illness is important for recovery, it allows you to come to terms with it, acknowledge it, and figure out how to move forward. I am still working on this, it isn't easy. The more I've tried to push it away, the harder it is for me to mentally cope because I become angry at Lyme (which is totally okay to do, too) rather then work with it. And those negative emotions towards your disease can actually make it worse and cause flares (anger is a type of inflammation in your life and Lyme feeds off inflammation. Lyme also looks for any moment to pounce and when you are sad or upset or negative, it can weaken your immune system and allow Lyme an opening). I am coming to terms with Lyme by acknowledging I'm a fighter, a warrior.

     

    I AM a Lymie. I'm proud of it. I stand up for everyone else who is suffering. I'm making a point.

    And this is why I'm a fighter… because I had an IV line in my arm, straight to my heart, for 7 months.
    And this is why I'm a fighter… because I had an IV line in my arm, straight to my heart, for 7 months.

    Oh, you take a multi-vitamin and fish oil? Add 50 more pills to that and 7 tinctures. Now you're close to my level.
    Oh, you take a multi-vitamin and fish oil? Add 50 more pills to that and 7 tinctures. Now you're close to my level.

    Why do you call yourself a Lymie (if you do)? Let me know in the comments!

    LDI Update

    July 7, 2015 by Victoria Faling 8 Comments

    After my last post in regards to LDI treatment, I received A LOT of feedback. Especially from people who were searching it online and my blog came up. I received many emails and comments (both on my blog and on Instagram) asking questions about LDI, how it was going, how they can start this treatment. I am more then happy to help all of you but, just a small reminder, I am not a doctor and this is only MY experience. I am so happy to share it, though :).

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    So, since I last posted I have taken 6 doses! Here's how it worked: I started at 15c (yes we dropped way back from my original 8c dose) and then every week I dropped 1c lower (15->14->13, etc). The idea was to drop 1c until I took a dose that made me feel GOOD after and not herx. Dr. Vincent recently changed his protocol where if you had no response to a dose you could take another one the next week instead of waiting 7 weeks. Now, if you have a negative reaction (herx) you must wait the 7 weeks.

    I made it down to 11c post-vacation and felt alright the following day (aka, I didn't need a nap). But I wasn't sure if it was the LDI or just that post-vacation high (and having gotten tons of rest) so I took 10c last week. I have felt crappy ever since and I'm not sure if it is the LDI either. I think the LDI kicked off a herx and then Lyme just set in. I saw my doctor this afternoon and we have decided 11c will be my dose for now. This means I wait another 7 weeks before the next shot of 11c.

    It can take up to 6 months to find your ideal dose and it can take even longer to really feel effects of LDI. It takes time for it to work and ideally after every dose the positive effects will last a little longer.

    The next thing that is going to be added to my treatment regimen is bee venom therapy. I am starting with some topical bee venom and then will soon add in the actual bee stings. I am very excited to begin this treatment as I have heard some very positive results from it (cough BROOKE cough… among others). I also have some other exciting treatment options that I will be adding in but won't be sharing about those quite yet. I'll be sure to keep you all updated along the way!

    LDI Update

    April 15, 2015 by Victoria Faling 21 Comments

    Two weeks ago I had my first shot of Low-Dose Immunotherapy (LDI) for Lyme disease. When I posted the picture below on Instagram and Facebook, I got a huge response. Many people wanted to learn more and although I emailed many people with details, I figured I'd post about it, as well. LDI itself isn't new but the us of it for Lyme is. I am not an expert on the topic but I will share what I do know. 11050173_805500209498155_4190632989240467067_n

    LDI for Lyme specifically was really developed by Dr. Ty Vincent in Alaska (http://www.mat-suim.com/index.cfm/fuseaction/site.physicians/action/dtl/phys/99801759.cfm). He's had over a 90% success rating in treating/improving Lyme patients. LDI is basically a way to desensitize the immune system to keep it from over-reacting. The idea is that our chronic symptoms (especially after years of treatment) are caused by our immune systems still reacting to the bugs even if they are gone or back in hiding. Our bodies basically just keep attacking ourselves so we still feel sick. LDI combines beta glucuronidase (an enzyme) with Lyme (and co-infection) antigens to help our immune systems build back tolerance. I think LDI is based off the idea that chronic Lyme would be treated as an autoimmune condition. I found this to be a really good article about LDI for Lyme: https://www.specialtynaturalmedicine.com/lyme-disease-ldi/. Dr. Schrader is also another well known doc for using LDA/LDI therapy but for all sorts of diseases and reactions. He is based here in Santa Fe and does some awesome work. He has recently added LDI for Lyme to his repertoire of what he treats.
    The way I think of it is that LDI is like an allergy shot for Lyme- it helps boost and calm your immune system at the same time. The doses given are SUPER small so it's almost like a vaccine… your body learns to handle the Lyme in VERY TINY doses so it can build up the correct tolerance. LDI is extremely safe since the doses administered are SO SMALL! Unlike traditional allergy shots which can cause a severe reaction in a small amount of people who are extremely allergic. LDI is administered in one of two ways, either under the tongue or by a tiny shot under you skin (similar to a B12 shot). I am receiving the skin shots.
    Dr. Vincent works with people all over the country and will ship you the treatment. The cost of LDI is so cheap compared to a majority of Lyme treatments and it is very promising. I will keep you all posted but so far I have not felt any positive effects from the LDI. You can only receive a shot every 7 weeks and it can take up to 6 months to find the correct dosage for you (thus taking 6-12 months to really benefit, although many people do benefit after the first few shots if you get the dosage right). I did herx after my first shot which was at a low dose so fingers crossed!

    Lyme Disease Challenge

    March 14, 2015 by Victoria Faling Leave a Comment

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    Lyme Disease has been called “the great imitator” and can be mistaken for numerous diseases such as ALS, MS, Chronic Fatigue Syndrome, Fibromyalgia, Alzheimer’s, Parkinson’s Disease, autism and other difficult-to-diagnose multi-system illnesses.

    March kicked off the Lyme Disease Challenge to help raise awareness about Lyme disease and raise money for research (think ALS ice bucket challenge-esq).

    How the challenge works:

    1. Post a photo or video of you taking a bite of a lime

    2. Share a fact about Lyme disease, like the one I shared above

    3. Donate at least $10 to ILADS

    You can learn more about the challenge and how to participate HERE

    So far, I'd say it's been a success. I have had an amazing amount of support with this challenge.

    Not only did some of my amazing friends participate without me even asking...

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    But BOTH of my jobs have!

    All my coworkers at Verde Juice in Santa Fe recorded a video and my boss donated $100 to ILADS

    IMG_8685IMG_8687 You can watch our full video on either the @verdejuice Instagram page OR on Facebook

    And at Anytime Fitness Santa Fe, they made the Lyme disease challenge the theme of the month. We are trying to see how many people we can get to take the challenge.

    IMG_8684 You can visit their Facebook page to follow along as members take the challenge.

    I truly hope this challenge can help raise awareness and get doctors, the CDC, and everyone important out there TO LISTEN,  to hear the pain that all of us lymies are screaming, and to make a difference.

    Just to remind you all what we go through as chronic illness sufferers….

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    BREAKFAST! Part 1

    Please help raise awareness and TAKE A BITE OUT OF LYME!

    This Is What Happens When You Have A Life

    February 26, 2015 by Victoria Faling 6 Comments

    I don't have time to post! Sorry you all! I've been so incredibly busy working, shadowing at the hospital, and doing treatment. I haven't had the energy or time to do any creative recipe creating. I've just been in a cooking slump, I suppose. I've pretty much been living off juice, homemade chicken soup, roasted veggies, avocados, plantains, and almonds. I'll work on getting the kitchen juices flowing again. Please hang in there until I do!

    And guess what else? I've relapsed a bit. We caught it before I completely crashed but I'm back on that treatment train.

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    YUP, back on ALL the supplements and back to the big pill container plus taking something every couple hours and timing all my meals around medications. I'm trying my hardest to avoid antibiotics but I will be taking Byron White's herbal drops for Lyme, Babesia, and Bartonella. I'll also be doing ozone IV's, glutathione pushes, Meyer's cocktails, and phosphytidal choline drips. (Yesss, my favorite, needles and IV's! I miss my picc line at times like this…). I'll probably be starting B12 shots again. I just can't avoid those needles, can I? Luckily I've been through it all before. I started A-L (BW's Lyme formula) this past weekend. I did a challenge dose of 5 drops which had me HERXING! Let me tell you. I was EXHAUSTED, body aches, headaches, head pressure, felt like death, the usual, ya know. My doctor had originally wanted me to do a challenge dose of 15 drops. Jokes on him. Thank goodness I opted for 5.

    So basically my life looks like this: Take massive amounts of pills, drops, and other gross liquids. Detox as much as possible (FIR sauna 3-4x a week, castor oil pack when I can, dry brush, juice). NAP DAILY! IV's every Friday. Eat very VERY little sugar (blueberries a few times a week because I need to feed my sweet tooth somehow) and 110% paleo.  Take some more gross liquids and starve for 45 minutes until I can eat since everything always has to be taken on an empty stomach. Sleep. Oh, and I fit work in there somewhere too. Luckily my jobs rock. 🙂

    Anyway, short and sweet but just wanted to update all you amazingly supportive people. When I told my Grandma this weekend that I was back on Lyme treatment she got very mad at the Lyme. So maybe if we all get very mad at the Lyme it will get scared and go back into hiding. Thanks in advance for being mad at Lyme for me ;). I'll work on some recipe creating soon!

    It's Been A While... Here's What I Do in a Day

    August 16, 2014 by Victoria Faling 5 Comments

    I've been getting a lot of questions about what my treatment is like these days, so I figured I'd share. But let me provide a quick update first.

    Farmer's Market!
    Farmer's Market!

    Well, I moved to Santa Fe, New Mexico. Yeah, you read that right. My parents moved here and since I finished school in May I moved with them until I'm healthy enough to be on my own/go to grad school. We are living in a hotel for a month until the house is done. Let's just say my bedroom is quite packed with treatment stuffs :).

    Last night in DC
    Last night in DC

    I went home to DC for a month earlier this summer before my family moved and I saw a new doctor. He's an integrative doctor NOT an LLMD. We are keeping my LLMD on the back burner for now. The new doc got me off most medications and supplements (yessssss! Less pills!) and is focusing on detoxing my body and resetting my autonomic nervous system. Some blood work revealed my mold levels are still sky high even after 6 months of mold treatment. So, I'm back on cholysteramine and something called VIP spray (vasoactive intestinal peptide), since those levels are low. I'm excited to explore all the holistic healing that Santa Fe has to offer, though!

    I crashed when I first got back to Colorado and was off all meds but now I'm slowly starting to feel better again. I'm really not having many specific symptoms anymore (Besides headaches) just the general exhaustion and run down feeling and I don't last long on my feet or doing things. I take a nap every day and need to rest between activities or limit how much I'm doing. Still, when I am able to do things, I'm able to GO DO THEM for the most part. Fingers crossed. Maybe it's just a good week. We will see.

    ANYWAY, Moving has meant basically no cooking or baking going down (hello hotel life and all my cooking supplies being packed in boxes). We do have a full kitchen at the hotel but again, everything I own is packed in boxes in the back of my car. But I felt like I needed to post and update you all about what is going on :). It's also meant not eating the healthiest in the past few weeks and I'm certainly feeling that. I can't wait to get into the house and start cooking again and making bone broth.

    My current treatment is focused mainly on detoxing. My doctor also has being doing colonics once a week.

    Castor oil pack-ing
    Castor oil pack-ing

    So here is a *general* example of a Wednesday for me, a random day of treatment but most of my days look similar. Sometimes I wake up later sometimes earlier.

    9 am: BT-detox drops (Byron White)

    9:30ish- Wake up and take first round of Cowden protocol

    9:30-10:30- make my way out of bed, Coffee enema and oil pulling

    10:30-12:00- Juice, breakfast, morning supplements and meds, reply to emails from you guys

    12:-12:30ish- yoga or bodyweight exercises (lately I've actually been able to go to the gym and do a little bit there!)

    12:30-1:30: Sauna and shower

    2ish- lunch + mid-day supplements (licorice to help boost my blood pressure) and meds

    2-3:30- chill out or run errands (usually stalk the internet)

    3:30-5: Castor oil pack (I only do this 3 days of the week, usually Wed/Thurs/Fri)

    5-6: Epsom salt bath OR another round in the sauna plus another shower (I HATE being sweaty or dirty so I shower too much)

    6- second round of Cowden protocol (I'm only doing half the protocol: 2 doses a day rather then the usual 4)

    7ish: Dinner, evening supplements and meds

    7-10: Watch too much TV, Juice number 2 somewhere in there (although I've been juicing less lately because $$$), dessert because I can't live without it (you know me, it's healthy, don't worry), reply to more emails from you guys (actually usually I just read them and reply a week later when my brain is functioning)

    Juice life
    Juice life

    My med taking has gone way done. I used to be taking something every hour! So that is a plus that it is at least slightly less. Anyway, if you have any questions please don't hesitate to ask!

    Who/What/When/Where/Why: Everything You Could Want to Know About DETOXING

    April 23, 2014 by Victoria Faling 30 Comments

    If you've had Lyme for a while you know how important detoxing is. If you are new to Lyme, you may not. I didn't know about the importance of detoxing until over a year into treatment! But let's back up a few steps. Detoxing is not only important for those with Lyme disease, it is important for EVERYONE. Why? Because our environment is filled with toxins that are getting into your body! How? Through pollutants in the air, the water you drink (if it is from the tap it contains antibiotics, pesticides, heavy metals, and other chemicals), the products you put on your skin (if not using all natural products), and the food you eat (especially if you are not eating organic).

    Everyone needs to detox as our environment in general is filled with chemicals that your body isn't meant to have in it. But many of those with Lyme also have compromised detoxing systems so we need to do EXTRA to get not only these chemicals out but also the toxins from the buggers. As you kill Lyme bugs through treatment, they give off toxins as they die which are VERY stressful on your body. This is what causes a herx and can make you feel worse before you feel better. Detoxing helps pull those toxins out quicker and make you feel better! Our little Lyme bodies can't handle much more overload so the more we can do to decrease the load on our organs and systems by detoxing, the better.

    I am living proof that detoxing works and is important! But it does take consistency and time. I am the most impatient person in the world and if I don't feel the effects of something immediately I assume it's not working or worth my time. You will usually feel at least some benefit almost immediately from many detoxing techniques but doing them for a prolonged period of time will work wonders. I've been consistent with my detox routine for a few months and I am just now starting to feel the real benefits. I feel like my toxin load is truly lifting and allowing me to move forward with treatment. So read on for a very important health PSA :).

    There are A LOT of things you can do to detox and I am going to go through many of them here. Of course, it is important to detox your environment, too, but that is a whole other post! I will be focusing on how to detox the systems in your body. Some I have tried, some I have not (I will mention that after I discuss each one). There are also probably more out there that I don't know about so please leave a comment if I leave something out or let me know what works best for you!

    Detox Baths (or Ion Foot Cleanses): THIS is one of my number one favorite ways to detox! It is easy and most anyone can do it. Plus it is relaxing. Detox baths are done using epsom salts and any other additives you want. My favorite combo is 2 cups epsom salts + 1 cup baking soda + 1-2 tablespoons ground ginger. Put all of this into a warm-hot bath and sweat it out for 15-20 minutes. I light candles and put on some good music to help de-stress. Epsom salts are well-known for their many benefits and are used in baths to help pull toxins out of your body, alleviate joint and muscle pain, and improve oxygen use (these are only a few of the many benefits). Baking soda (or Apple Cider Vinegar) helps pull out toxins, as well, but it also balances pH by making your system more alkaline (Lymies can tend to be out of wack). ACV has anti-viral, anti-fungal, and anti-bacterial effects, as well (Hippocrates was the one who preached about its antibiotic effects!). Ground ginger helps increase the heat in your body allowing you to sweat more and thus pull out more toxins. Your largest detoxing organ in your body is your skin! So the more you can sweat out through your skin, the better! You can always add in some essential oils to your bath or other things like maca, special bath bombs or salts, etc, to make things even more interesting.

    Far-Infrared Sauna: This is on a similar level as a detox bath. The big idea here again is to SWEAT! But you want to use a FIR sauna. Far-infrared heat is different... far-infrared rays are able to penetrate the tissues heating up the whole body and both possibly killing buggers (which don't survive at high temps) and making you sweat out toxins. Far-infrared heat is also able to stimulate your lymphatic system, which has no pumps, to help flush out toxins. I have a portable FIR sauna I got off Amazon for a very good price. Dr. Klinghardt has shown that you only need to sweat for 10 minutes to receive benefits. I usually hop in and once I start sweating stay in for about 15 minutes (that is about as long as I can stand!). So my total sauna time ends up being 25-30 minutes. I think this bad boy has been key in helping me- I'm so full of toxins and I sweat like MAD in my sauna. Feels so good sweating out all the bad stuff! Especially since I can't work out right now and sweat that way.

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    Biomat (or Migun Mat): The biomat is, well I would say, famous in the Lyme community. It is like a giant heating pad you lay on and it emits far-infrared heat like the FIR sauna. It also emits negative ions. According to the Biomat website "If there are enough negative ions inside and outside the cell, the cell is able to absorb nutrients and eliminate waste product more effectively.  Flooding the body with negative ions enriches it at the cellular level and encourages the elimination of toxins and oxidants...Negative ions activate the body’s entire cellular communication system by opening cell channels and allowing nutrients to enter more easily and wastes to be eliminated, purifying the body at the cellular level." (http://www.biomat.com/faq/the-basics/). Biomats are a similar idea to the FIR sauna but you don't tend to sweat as much and you can lay on them for as long as you want. I have used one a couple times and love it! FIR heat is also shown to decrease inflammation (for example, I know a lady who showed signs of pre-breast cancer and after using her biomat everyday completely decreased all inflammation in her breast!) and if you have Lyme or any type of pain you know you have inflammation! Most people do!

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    Dry Brushing: This is where you take a brush like you would use in the shower- so a stiff bristled dry brush- and dry brush your skin. No water! Dry brushing stimulates circulation and the lymphatic system. Like I mentioned above, your lymphatic system has no pumps so in order to keep things moving and detox you must stimulate it. Your lymph system is part of your circulatory system and basically "clears" toxins from around your body, recycling old blood back to your heart. It's stimulated by movement and breathing, so exercise and deep meditation (with lots of breathing) can help support your lymphatic system. But being sick means it needs extra help and also means you probably can't exercise as much! I dry brush daily right before I go through my detox regimen (so before a sauna, bath, or hot shower is best). To dry brush you want to go in sweeping strokes toward your heart. Start from your feet, sweeping up your legs and then down your arms. Remember, all toward your heart as that is the direction of the lymph system flow and you are trying to help it out.

    dry-skin-brushing

    Lymphatic Drainage Massage: Since we are talking about the lymphatic system! This type of massage is very different from a typical massage and you have to seek out someone who offers them and specifically knows what they are doing. They use a special technique to stimulate the lymphatic system. I have never had one of these but you can YouTube videos of it that will even show you some basic moves you can do on yourself at home! I know people who have had these and feel amazing afterwards (which makes perfect sense because you are increasing the effectiveness of your detoxing system). Here is a video of an at home technique you can use!

    Yoga: I just mentioned the importance of movement for lymphatic drainage and yoga is a great, low energy way to do that. Yoga can stimulate your lymphatic system without too much overload on your body. Yoga can also help with general detox. Poses that help the best are twists so if you are doing yoga for detox I would tell you to chose a series with a lot of twists. The idea here is the same as that of wringing out a towel. Twists wring out your organs of toxins the way you wring out all the water in a towel. Twists also help stimulate organs and systems in your body. There are lots of other poses that help with detoxing and health but I am not a yoga expert. You can google this or YouTube videos. I generally just YouTube a yoga video to do that day and here is one of my favorite ones for detox and digestion!

    Castor Oil Packs: One of the major detoxing organs in your body is your liver. But it can get REALLY clogged up from toxins, antibiotics, and parasites (they love to live in there and in your gallbladder). Castor oil draws toxins out of your body through your skin, helping alleviate the load on your liver. I get terrible spleen/pancreas and liver pain and these bad boys have helped decrease that tremendously! These packs also help stimulate your lymphatic system and help boost your immune system. How perfect? Get on this now. What you do is buy some organic wool or cotton and some castor oil. This is a bit messy so be prepared. You want to pour the castor oil over the fabric (do this in a bowl or the sink!) so that it is saturated but not dripping. Then lie down on a towel and lay the pack over top of your abdomen. I cover my whole abdomen because all of it always hurts but many people just use a piece of fabric big enough to cover their liver (the upper right quadrant of your abdomen by the base of your ribs). Then lay another towel or some plastic wrap over the pack and top it all off with a heating pad. Lay and relax, nap, or read for 45 minutes to two hours. You want to go 3-4 days on then 3-4 days off.

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    Juicing: Man oh man, the benefits of juicing are endless! I'm not going to spend time talking about ALL the health benefits of juicing, I will just focus on the detoxing part of it all. Green juices help with general detoxification and also serve as a gentle heavy metal detoxer. You all have heard of the importance of eating your green leafy veggies but juiced they can help pull out toxins even better! This is because the nutrients from veggies in a juice form are very quickly and easily absorbed into your system and your digestive system doesn't have to do any work to break down the fiber. They also assist the liver in detoxification. Cilantro and Parsley are two herbs that are EXCELLENT at detoxing and releasing heavy metals (but make sure you take a binder to bind the released metals and excrete them from your body). Dandelion greens help decrease inflammation and assist the liver and kidneys in detoxification. They are a diuretic, helping you pee out those nasty toxins in your body. They may also help boost the immune system. Turmeric root is also a great thing to juice. Turmeric contains the compound curcumin which is a natural anti-inflammatory. Juicing turmeric root gets that curcumin right into your system! Ginger is one of my favorite things in the world to juice! It is an aquired taste and you may need to start small and increase the dose slowly. I aim for ½-1 inch piece of ginger in all my juices. Ginger helps decrease inflammation and stimulates circulation to improve the natural detox systems in your body.

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    Colonics/Colon Hydrotherapy: Yes, we are going to go there. Your colon gets mad clogged up with toxins that just sit in there and old food that ferments. Gross, I know. And even if you think you are regular, you're probably not and have some toxin build up in your intestines. Many of those with Lyme have digestive issues and a lot of are constipated due to antibiotics or Candida (while some are the complete opposite). So basically what happens is they shoot water up your... um.. butt... and cleanse out your colon... then everything comes back out. They usually last 45 min.-1 hour (sometimes longer) depending on who you see and how toxic you are. Bile is "recycled" in your body but colonics helps clean some of that bile out which can hold toxins in it. They may also help clean out parasites due to helping get bile out and other things that have been stuck in your colon. I have tried colonics and I have to say I wasn't the biggest fan probably because my digestive system is cray. BUT I believe in their benefits and I know many people who have found them to be amazing and include them as a regular part of treatment (or at least every few months to help you feel cleaned out and less toxic).

    Coffee Enemas: Alright, on a similar note as colonics, we have coffee enemas. These are done at home rather then at a colonics place. You basically shoot coffee up your ass and wait for the magic to happen :p (sorry for that graphic image... but I know I got you to smile). So like colonics, they clean you out but coffee has some compounds that serve as awesome detoxifiers in your body. Coffee is absorbed right into the blood stream when you do a coffee enema and compounds in coffee can help detox your liver and help your body produce more Glutathione. AND LET ME TELL YOU, GLUTATHIONE IS ONE OF THE BEST DETOXIFIERS! You produce it naturally but many with Lyme don't produce enough or need an extra boost to help detoxify. Many doctors will give it via IV or a supplement form to help alleviate a herx or symptoms in general. Dr. Horowitz raves about it in his book. Coffee enemas can also help with heavy metal detoxification. You basically buy a coffee enema kit (can get them cheap online) then boil some good, organic coffee and spend some quality time with your bathroom. I have not tried these yet but I plan to start this summer once I am out of school and have more time. Everyone I have talked to who has tried them loves them and really benefits.

    Lemon Water: Squeezing lemon into your water can help detoxify your body, balance pH, and boost your immune system. Lemon is one of those all natural, easily accessible super foods in a way! Lemon helps stimulate liver function and is considered an antiseptic. It has also been shown to help in the treatment of malaria (read: help with Babesia!). I try and drink lemon water daily (mixed with Thieves essential oil) and add it to homemade dressings, sauces, or squeeze it on all my food.

    Supplements: There are many supplements that you can get at your local health food store that bind toxins or help detoxify your body in some way. Some of these include a probiotic, milk thistle, chlorella, and activated charcoal. Chlorella and activated charcoal are great at binding toxins and pulling them out, especially heavy metals. They are low level though so that is important to keep in mind. I would not advise using activated charcoal daily unless your doctor as recommended that as it pulls EVERYTHING out (even the minerals in food and whatnot) plus can cause constipation. I use activated charcoal if I know I have eaten something bad or I am having terrible symptoms or herxing. Chlorella can be taken daily and is a mild detoxifier that is great for the body. Chlorella is a binder, as well, so it can bind heavy metals if you have released them with juicing or cilantro. Milk thistle is another mild yet wonderful liver detoxifier. Probiotics are important for anyone with Lyme disease but they can help detox the digestive tract slightly, as well. I'm sure there are other supplements out there but these are the main ones I know of and use or have used. They all can be purchased at your local health food store or Vitamin Cottage.

    Byron White Formulas: First of all, these can only be purchased through a doctor. Many LLMD's and alternative medicine docs will know of these or use them. Byron White makes a few amazing detox formulas including BT-detox, NT-detox, and Detox-2. I have used all three and I am currently taking BT-detox which has really helped with my brain fog.

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    Herbs and other detox formulas: There are many herbs out there that help with detoxification. If you have heard of the Cowden Protocol, he includes several detox drops in his regimen (including Burbur, Parsley, Pinella, and more!). I am on the Cowden protocol but have to say I don't find his detox drops to be strong enough for me. They work but I need extra doses plus all the other stuff I have just discussed! There are also many essential oils that help with detoxing. Essential oils are not my speciality and I am just starting to get into them (very excited, by the way!). I know of someone (cough cough KAYLA cough cough) who knows a lot about them and I'm sure she would be willing to provide insight if any of you had questions (I hope she doesn't mind me mentioning her here... and I also feel like she wouldn't mind if I said that I could put any of you in touch with her if you have more questions about essential oils and the MANY benefits of them)! There are many other detox formulas out there that health food stores sell or your doctor may know of. I have mentioned the main ones I am aware of but wanted to include this bullet so you all were aware of the fact that there are more out there!

    ALRIGHTY, so this post took me a few days to write and I'm sure as soon as I publish it I will think of a couple more things I forgot to mention. I'll probably do a second post if that happens OR if you all comment about a bunch of methods (then I can share them with everyone!). But please do comment with your favorite detoxing methods and any methods I have not mentioned. I feel like a cheerleader for detoxing so I always want to learn about new detoxing treatments :).

    Jicama Fotato Salad (Raw, Paleo)

    April 5, 2014 by Victoria Faling 3 Comments

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    When I was in Santa Fe I had this amazing jicama fake potato salad at one of the raw food bars we went to. I wanted to re-create it but not exactly. I'm NOT a mayo fan plus I'm not doing eggs right now so I wanted to make a different type of "sauce" per-se for a jicama salad. I use mustard in this recipe so it does have a little bit of a different kick then potato salad but I like it :). This salad is very light and refreshing so it makes for a great side dish to classic summer dishes. It makes me happy because I think of warm weather when I eat it. Perfect for this sneaking up spring weather (yay!).

    Jicama Fotato Salad

    Ingredients:

    1 small-medium jicama

    4 stalks of celery

    2 tablespoons of raw tahini

    2 tsp. stoneground mustard

    2 tablespoons of olive oil

    juice of 1 small lemon

    2 pinches of salt

    ½ tsp. cumin

    Chop up the jicama into cubes and place in a bowl. Slice up the celery stalks into thin bites and mix with the jicama. Mix all the remaining ingredients in a small bowl. Pour the dressing over the jicama/celery and mix thoroughly.

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    Just store in the fridge. I find that when cooled in the fridge, it mutes the dressing taste a bit so feel free to add more mustard to the dressing when you make it (even though it may taste very mustard-y at that time). Simple and yummy. Get on it!

     

    But The Food...

    March 19, 2014 by Victoria Faling 2 Comments

    I survived a mini-vacation! My family and I went on a long weekend vacation to Santa Fe, New Mexico. My parents are moving there this summer and I had never been. I wanted to see where I would be spending the next year of my life after I graduate plus see some of the houses they were looking at. It's different then anywhere I've lived before and I can guarantee you I am nervous about moving... but I'll be spending the next year completely focused on treatment so I suppose the location doesn't matter THAT much. I don't care about making friends or going out, I just want a sunny, warm place to heal. I suppose Santa Fe will do ;).

    This is the first semi-real vacation I've been on in over 2 years thanks to Lyme. I don't count flying home to DC every month to see my doctor as vacation. My parents flew out to Denver and we drove my car down to NM. It is an 7-8 hour drive but that just meant plenty of time for me to rest. Plus, driving meant I could bring all my treatment stuff with me (my juicer, my sauna, food, meds, etc). It turned out pretty nice and my parents and I didn't kill each other! That is a miracle in itself :).

    While I was there I had a phone appointment with my LLMD and found out some big health news but I will be posting about that later this week.

    So what else did we do? Oh besides seeing the town and looking at some houses we ate some AMAZING food. My mom and I did research (okay, mostly I did) on restaurants in the area before going. I wanted to find organic, mostly raw places of course. And DANG DID I FIND THEM! Almost everywhere we went offered fresh juice so I hardly needed to use my juicer the whole trip!

    The first night we went to Cafe Pasquals. Everything is organic and they have lots of gluten free and vegan options. Plus fresh juice, of course. We started with some great appetizers and green juice but my main course was a gluten-free vegetable-quinoa burger with sprouts+guac+side salad.

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    The next days highlight of meals was dinner, again. The second night we went to BODY. An all organic, locally sourced, raw, gluten-free restaurant. They also have yoga classes and other holistic fun things. I'm excited to explore all they have to offer when I move next year.

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    We started off with a raw chips platter that had dehydrated sweet potato, beet, onion, and kale chips. PLUS, Fresh juice, of course! AND A WHEATGRASS SHOT!

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    For my main dish I had this incredible chopped kale salad with a creamy almond dressing and sunflower seed croutons (how cool?!)

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    The third days highlight was lunch! We went to Rasa, another all organic, local, raw place. The place was adorable! They also have a spa and yoga. They had amazing options that change daily along with smoothies and juices, raw treats and chocolates, and raw crackers and granola that they sell, too.

    I had another green juice plus portobello "steak" that came with a mixed salad and jicama "potato" salad. My mom had the most amazing raw pizza! I didn't get a picture of the pizza but trust me, delicious and beautiful.

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    The last morning my mom and I hit up Sweet Water Harvest Cafe where they make most things gluten-free, grind their own flours fresh every morning (from sprouted grains), and offer a few raw options. I didn't snap any pictures but my mom had awesome buckwheat pancakes and I had a banana-almond butter smoothie with raw granola.

    I'm excited to move and explore these places more plus up my raw cooking and baking game (I guess I should say raw food prepping, instead). I'm planning to get a dehydrator so I can be more creative in the kitchen with raw food. Anyway, wanted to share a quick post about my trip and all the amazing food! I'm sorry I didn't take more pictures and the ones I did are kind of crappy.... but I had to get a quick pic before devouring these meals. Eating=more important than pictures :). Got to enjoy the moment!

    I hope you all are having a wonderful week. I'll post a health update soon.

    What is the best meal you have ever had? Favorite restaurant? I'd love to know so share in the comments!

    A New Chapter...

    February 14, 2014 by Victoria Faling 12 Comments

    That is a lame title. I had thought of a good one the other day... but that was the other day and now I don't remember it at all. 

    I was at home in DC last weekend and saw my doctor on Monday February 10, Exactly two years after my initial horrible sickness set in. February 10, 2012 I got food poisoning and spent the night vomiting my guts up. It was just as horrible as it sounds. I continued to feel crappy for the next week and figured I just had the flu or a bad cold. But I never got better. Things just got worse. And worse. Until my doctor started me on Doxycycline at the end of March. If you've read my About page you'll know how that spring semester went for me so I won't go into great detail here. 

    So what happened at my doctors appointment? Well both my parents went and we met with both my doctor and the head doctor because SOMETHING needed to get figured out. Basically, we concluded that my body had pretty much shut down from overload of treatment. We decided it was time to take a break from antibiotics.

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    ALL antibiotics! Yes, that means I got to get my picc line out! I was ecstatic when the docs said I could get it out because I went in there with one goal- to make them let me get it out. Mission accomplished and I didn't even have to fight for it! My adrenals ARE SHOT. They have been for years so I am starting Cortef to see if that helps at all. I'm stopping B12 shots because they are doing absolutely nothing for me. We decided we are going to spend the next couple weeks letting my body rest and focusing on detoxing plus eradicating the mold. In two weeks I will start the heavy metals chelation protocol (4 days of oral chelation and 3 days of mineral replacement). I'm still taking all my supplements plus some Byron White detox formulas and BLT and Crypto-Plus by Researched Nutritionals (some herbal formulas for fighting Lyme, Bartonella, and Babesia). If I am handling everything alright (aka don't die from not being on abx) over the next couple weeks we will start an herbal protocol. Most likely the Cowden protocol. This makes me very  happy because I am so over being on abx all the time. If I had stayed on them it would have been 2 years straight on abx in March.... yuck! My gut and mental-ness (yes I realize that is not a term but I'm making it one) need a break.

    I already mentally feel so much better. It's weird not having my picc and I felt a little empty at first. I mean, a pretty big part of my life for the past 7 months is now GONE. What?! It's crazay. But not having to do the infusions every day and not having to take drugs every day is a huge mental break and I feel more positive already. I'm ready to fight this thing! EFFFF YOU LYME! I AM COMING FOR YOU AND I WILL FIND YOU AND I WILL WIN!

    Image(my sad arm and my ridiculous smile)

    I have now been off abx for 4 days... 4 whole days! I was doing okay until yesterday afternoon when I crashed and crashed hard! I think it was more my fault then not being on abx. I decided HEY, my picc is out! Let's go to the gym and use my arm that I haven't used in 7 months! ... Poor choice, Victoria. My body was NOT ready for that. So I slept all afternoon and most of today (skipped class... oops). Then I took a detox bath and feel much better :). SO moral of this story: I've been off abx for 4 days and haven't died yet- yay! Keep your fingers crossed for me.

    So my goals over the next couple of weeks are to DETOX DETOX DETOX!

    -Juice daily (2x daily but at least 1x if something comes up)

    -Dry Brush daily

    -Epsom salt baths 3-4 days a week at least (probably all I have time for with school)

    -EAT CLEAN- mostly raw, some solid protein, whole foods, organic, drink bone broth (made some last night... yucky but I gotta do it for my gut!), alkalizing diet, lots of veggies! (I failed at this already yesterday but that is because I crashed and burned and had been gone earlier in the week so didn't have a lot of food in the house.... MAJOR Grocery shopping trip this weekend and food planning for the week!)

    -Lots of lemon water and tea

    -Take all my supplements every day!

    -Rest! My body needs some serious rest on top of detoxing so I need to make sure to do this

    -Spend some time with friends- staying motivated and positive for me involves surrounding myself with awesome people and now that I'm not all consumed with IV's I can spend at least 1 night a week catching up with a good friend.

    -I'll also be doing acupuncture and ozone enemas with the ND in town I mentioned in my previous post. Had my first ozone today and it went well but I haven't noticed a difference (probably because we did a super low dose and it was my first one).

    My family is thinking about getting a second opinion (from not a Lyme doc about not Lyme related illnesses) because we think I may have something else besides Lyme. Like something endocrinological related since I've had issues with my thyroid and adrenals (forev's) and I don't respond to treatment (like to ANYTHING) the way I should. But we'll save that for another day and I have no idea right now.

    When my nurse came to pull my line out she brought me a little gift, too. It was so sweet! She said since she won't be around for graduation now (since my line is out) that this was my graduating from my picc line present :)- Beautiful earrings!

    Image (Kind of a crappy pic, sorry!)

    OKAYYYYY done with this long post and time to go to bed. Sorry if are bored to death now.

    Hope you are all doing well! I'm also hoping to have a new recipe up soon- we'll see what I get done this weekend.

     

     

    Lyme update + Raw Vegan Sushi with Sprouted Buckwheat Spread

    February 7, 2014 by Victoria Faling 8 Comments

    Lyme update is up first so skip over this next part if all you care about is food.

    The past few weeks... okay months... have been hard. Really hard. Lyme wise. I feel like I've slowly been headed downhill. Despite learning all these things that may be affecting treatment and my health (mold, heavy metals, etc) and addressing them, it doesn't seem to be doing much. I feel like nothing, treatment wise, touches me. It may help for a week or a few weeks then it's like I'm not even taking anything. I start treatments that other people rave about (yes, I realize everyone is different but something has to work for me, right?!) and it makes no difference for me. I'm hoping to start more of an herbal protocol at some point in the next 6-months and see if that makes a difference. I take some herbs now but I mean a real hardcore herbal protocol.

    Side note update: Last week I got my heavy metals test back which came back positive for mercury, lead, thallium, and a little cesium. I'll be starting a chelation protocol for that within the next week or two. I'll be doing 4 days a week of oral chelation then 3 days of mineral replacement (since chelating pulls out essential minerals with the metals).

    A year ago at this time wasn't great either but I was able to workout at least 3 days a week, go out occasionally, and do more (granted, I still had a lot of other symptoms and would crash at least once a week). The past few weeks I haven't even been able to do any yoga because I'm EXHAUSTED beyond belief, my muscles feel weak, and my joints are killing me. I have to say, though, that I don't feel like I have specific Lyme symptoms (like night sweats, air hunger, vision spots, etc) besides joint pain. I feel more just extremely fatigued, worn out like nobodies business, and like I am repeatedly being run over by a bus. Every little task of the day takes SO MUCH ENERGY. Brushing my teeth is like death. I'm wondering if it is just intense toxin overload from killing off the bugs and I am not detoxing enough or if I'm legit Lyme sick. Detoxing has been tough because 1) I'm in school which means less time for it 2)our water doesn't get/stay hot so I can't really take detox baths... unless a cold bath counts 3) when I feel like crap my eating goes to crap because I'm exhausted and don't have the energy and frankly I stop caring because I feel shitty as it is already. I realize when I feel the worst is when my diet needs to be the strictest.... you don't have to tell me. Come make me food, please?

    It's been extremely cold and snowy here, which also doesn't help because cold makes me feel worse. This also means walking to class (in the cold) through snow and it feels like I'm hiking a mountain. So, my body is dead by the time I get home. BUT HERE IS THE GOOD NEWS! I saw a new doc yesterday. He is a Naturopathic Doctor who went to the grad school I am considering AND he has trained with Dr. Klinghardt (they are on a first name basis). He is not a Lyme-specialist but knows about lyme (obviously, Dr. Klinghardt) and works with other Lyme patients. I found him because he is also an acupuncturist, which is my main reason for seeing him (yay some detoxing help!), but figured he might have some other insight and ideas for treatment. My appointment went great and I felt able to be open and honest with him about my disease and symptoms. He was very receptive and listened intently. He writes everything down, even the information he wants me to remember (writes it down FOR ME to take home... doesn't just say it) and maintains constant open communication with his patients (you can call whenever or email and he wants to make sure you keep him updated about how you are feeling with treatment).

    Anyway, just by feeling my pulse (based on the Chinese Medicine standards) he immediately pointed out what systems in my body are out of whack... the exact ones I knew where and had been giving me hell all week! We did some acupuncture which helped a lot. I'm going to continue seeing him for acupuncture but he is also having me do ozone enemas. I AM SO EXCITED ABOUT THIS! I have heard that ozone is supposed to be great for Lyme and I also have heard good things about enemas for detox (plus my digestive system is whack) so I hope this helps at least some! He said he has tons of ideas but we will start slow and see how I respond. I'll keep you guys updated.

    So, food now? Yes? Yay. This was my first attempt at making any type of sushi period but it turned out AWESOME. This recipe is very flexible but below is a basic starting point. You can use whatever veggies you like for inside the wrap but I will post exactly what I used. There are some sprouted ingredients (the most important is the buckwheat), which needs to be done 2-4 days in advance. Buckwheat is awesome because it's actually a fruit seed. Plus it is gluten-free. It is a complete protein and healthy for your heart and digestive system! Here we go:

    Raw Vegan Sushi with Sprouted Buckwheat Spread:

    Ingredients:

    Nori Wraps (can get at local health food store like Whole Foods)

    Beet

    Jicama

    (Any veggies would work... carrots, cucumber, zucchini, etc)

    Pea Sprouts

    Sprouted sunflower seeds*

    Buckwheat spread (recipe below)

    Avocado

    *To sprout sunflower seeds: Get some sunflower seeds, shelled, from the store. Rinse well and soak in water overnight, first. Drain in a strainer and rinse again. If you have mason jars with mesh sprouting lids you can put them in there, without water, or you can spread them out over a strainer. You basically want to let them sit in the strainer or jars (spread out so they aren't all piled on top of each other) for 2-4 days, rinsing twice a day, until they have sprouted. You can google videos for a better understanding if you need! 🙂

    Let's make the sprouted buckwheat spread first....

    Sprouted Buckwheat Spread

    Ingredients:

    2 cups raw sprouted buckwheat*

    1 tbs. apple cider vinegar

    ½ lemon, juiced

    ½ tsp. sea salt

    2 tbs. olive oil

    Water, as necessary

    *First you need to sprout your buckwheat. Go to the store and buy raw buckwheat groats (THESE ARE GLUTEN FREE). Rinse and soak your buckwheat like you did your sunflower seeds. After soaking for 1-24 hours rinse VERY well (they will have a slimy mucous on them, which is normal). Spread them out on a plate and let them sprout for 2-4 days, placing in a strainer and rinsing well 2x a day. They are done once their little tails are about as long as the groats themselves (too long and the flavor changes). Now they are ready to go!

    Place all ingredients, except water, in a food processor and process until smooth and creamy! May take some time like when you make other nut/seed butters. If it seems thick add a tablespoon of water at a time until smoothed out. Add more salt, lemon, or spices as you desire.

    Okay, now onto The Sushi

    First, you'll need to peel and chop your beet and jicama. Cut your veggies into strips (so they look like french fries). Now, lay out a nori wrap on a cutting board and lay your chopped veggies in a line at one end of the wrap.

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    Next, take some sprouts and place them over top of the veggies. Sprinkle on your sunflower seed sprouts and sliced avocado. Spread the buckwheat spread onto the OPPOSITE end from your veggies.

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    Image (I used carrot and beet pulp from juicing as a "rice" for this one after an idea I got from detoxinista.com... have to say, didn't like it, though).

    Okay, time to wrap it up! Don't be scared, this isn't as hard as it may seem and I find it easier then wrapping a burrito (this is saying a lot... I can't wrap a burrito for my life). Start at the VEGGIE END, rolling your wrap tightly. You may have to push the ingredients in on the ends. Roll until you get to the buckwheat end, the buckwheat spread will help seal the wrap and keep it closed.

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    Next up we will cut the wrap into sushi bites. This is easy, you guys got this! Just take a knife (I mean you can try it with a spoon if you want but I don't think you will be very successful) and cut your roll into bite sizes so it looks like sushi.

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    YESSS! NOW IT IS TIME TO PUT IT ON A PLATE AND EAT IT!

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    Clearly that is snack size status right there ^^^. I would advise making a couple wraps if you are having these as a meal OR serving them along side something else. Below I served mine with marinated veggies.

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    Do you love sushi? What is your favorite kind? I love sushi and it was a blast to finally make my own, especially raw style. As always, let me know if you try these bad boys out and how you liked them.

    Wishing you all the best and stay warm!

    LLMD, Christmas, and My New Treatment Plan

    December 28, 2013 by Victoria Faling 2 Comments

    I hope you all had a wonderful Holiday! Christmas at home with my family was wonderful- low key and easy, just how we like it. Christmas Eve consisted of our family's annual walk down to the national Christmas tree. 

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    We always count how many trees we see in people's windows on the walk- 140 this year! I didn't get anything too exciting but I did get Dr. Horowitz's new book and I'm slowly working my way through that. I can't wait to finish it.

    I saw my LLMD on Monday, before Christmas, and learned a lot! We had done virus and mold testing which both came back positive (VERY high levels of Ochratoxin A along with being positive for 3 viruses). We are doing the DMSA heavy metal toxins test next week. My doctor said all her patients with just Lyme are getting better while the ones with these other viruses or issues in the way are not. We have to address those first to get to the Lyme.

    So I am now on a new treatment plan:

    -IV for Mold (a very strong anti-fungal) 4 days a week w/ 3 days a week of Vancomycin

    -Taking Cholestyramine to draw the mold out

    -On 2 different anti-parasitics (I traveled a lot and I've had parasites in the past, we think they haven't been eradicated)

    -Anti-viral prescription

    -Mepron on the days of Vancomycin

    -Rifampin for the Lyme

    I'm so happy because I am on less antibiotics and have cut my pill load down. We also cut out some tinctures because it was too much and I didn't feel like they were doing anything. I still take a butt-load of supplements though. My family and I are cautiously  optimistic that addressing these other road blocks will help get me better but I'm keeping my fingers crossed. I really think we are getting somewhere now! Dr. Horowitz does discuss this in his book, that most Lymies have all these other things to address besides just the Lyme in order to get better.

    My new IV is a drip bag (my old ones were an eclipse ball) so that has been fun...

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    The first night we didn't have an IV pole yet so my nurse made my dad hold the bag up for me. My dad wasn't having that so he hooked me up the chandelier! I'm sorry this post hasn't been too exciting- I've really just spent my days juicing, eating giant salads, and doing treatment. 

    Wishing you all a happy, healthy NEW YEAR!

     

    MIA much?

    December 20, 2013 by Victoria Faling 9 Comments

    So, it's been awhile. As you all are fully aware.

    Lyme + IV + school= NO time (actually it equals exhaustion and no energy to blog),

    Anyway, I'm here to provide an update on my life! I finally finished finals so I am done with school the semester. I am so excited to be heading home for a month where I'll be able to relax, spend time with the family, and focus on healing.

     

     

    Let's start with treatment/Lyme stuff first, shall we?

    I'm still on IV abx, on two different ones, actually. Plus a million oral abx. I see my doctor Monday and something has got to change, I'm on too many drugs! I hate it. The month or two before Thanksgiving it felt like the IV was helping and I was finally getting somewhere. But since Thanksgiving I have been dead! By dead, I mean exhausted and symptoms I haven't had since I first got really sick (since before I started treatment!) have come out. It's kind of scary. There are things I was experiencing two years ago that were frightening to me and once I started treatment completely went away. I thought I had beat those off. Now they are back and I'm ON treatment. It's frustrating to say the least.

    I have been doing a lot of research (as most Lymies do), specifically with regards to more natural and holistic approaches to treatment. I honestly believe antibiotics themselves can't cure Lyme and are only a piece of the puzzle. I'm hoping to develop a game plan over break on how to attack Lyme. It's all just very exhausting (on top of already being super exhausted!).

    When I saw my LLMD over Thanksgiving break we did mold testing and virus testing so I am looking forward to hearing what the results of those tests when I see my doc on Monday. My LLMD hasn't been happy with progress and is wondering if there is something else getting in the way of treatment (like mold toxicity). I kind of hope there is so that we can address that and move on.

     

    Okay, next is diet:

    I've been an advocate of paleo. I mean, part of the reason I started this blog was to share recipes. But I've started to transition into a raw diet. I've read and heard personal stories about the healing effects of a raw diet. A month ago I met a lady who evaded chemo for her breast cancer by using a completely holistic approach and specifically by juicing and eating raw. I've read many accounts online, as well. I also have recently met a Lymie who went raw as a last ditch effort because nothing else was working and she was able to get of antibiotics! I'm aiming to be about 75% raw (for now) as I do think there is a place for some animal protein and fish in one's diet. I guess you could say I am going to be paleo-raw because I still will not be eating legumes, soy, or many grains (just buckwheat and occasionally rice). I will try to get some recipes up over break and I promise to keep you guys updated about how it is going! OH, I have also been juicing daily. So far I am at one big green juice a day. I know I need to juice even more then that but 1) It's expensive to buy all those veggies and I'm a college student not working and 2) it's a time and energy thing for me at this point. But mainly number 1 (you guys can donate to my juicing fund if you want 😉 ).

    I kind of feel like I'm turning into a hippy.... I'm juicing, I'm eating almost raw vegan, and I've been doing some yoga (since it's all I have the energy for). Ha!

     

    Um, so what else? Random stuff:

    Over the past 6 months I have met some AMAZING people with Lyme. I'm so blessed to have them in my life and to have gotten to know them. I appreciate all of their support and every one of my readers support, as well! You all are awesome.

    I may be MIA on here but I am very active on my instagram (@lemonsnlyme). So, if you miss me I would head over there and follow me!

    I really am hoping to post more over break so if there is anything you guys are interested in hearing about, let me know!

     

    Last but not least... HOW ARE YOU GUYS DOING?! Leave a comment or shoot me an email and give me a little update about you're life. I do genuinely care and I also love to hear from you all.

    We are going to end this post with a picture of a cute puppy I got to puppy sit... because puppies are cute and will always cheer you up!

    Image, L

    The First Week

    July 26, 2013 by Victoria Faling 2 Comments

    It has officially been a week since I got my picc line placed for IV antibiotic treatment for Lyme disease. I was scared out of my mind to get it in, but now that it is there I have adjusted pretty well.

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    I had to go to the hospital to get the line placed, but my nurses were amazing and so nice! The one putting my line in made me laugh the whole time (through all my tears). My arm was really sore for the first few days and I slept a ton for the first couple days, too. I do daily infusions which only take about 30 minutes total- so not a total day sucker, which is great (silver linings here people!). 

    My mom and aunt flew out to be with me for the first week and I can't thank them enough! It was so helpful to have them around. My mom helped me with infusions and wrote up a whole sheet of directions so I can just look at that to do the infusions. It's posted right on my fridge! They also cooked up probably 3 weeks worth of meals for me so I don't have to stress about that as I adjust to the picc line and if I have some herx reactions. They made my meatloaf recipe, a paleo lasagna (more like a paleo hash since I don't eat cheese so things didn't stick together well), and stuffed peppers (I'll be posting that simple recipe soon). They also made paleo zucchini bread from a recipe I found online. That recipe needs some tweeking so I'm hoping to make it again at some point myself and I'll post that if it turns out good.

    Don't worry, I won't stop posting just because I have food made for me already. I'm still planning out a few recipes (baked goods!) I'd like to try when I have time and energy. And i will keep you all posted Lyme-wise, as well.

    Bear with me through this hectic time!

    But, I want to hear from you! How are things going in your life? What is some experience you've really struggled with going through?

    HAPPY FRIDAY!

    BITE BACK!

    July 17, 2013 by Victoria Faling Leave a Comment

    Please, if you have some time, visit this link and participate. Help change the system and get Lyme recognized!

    Vacay and LLMD

    June 27, 2013 by Victoria Faling 4 Comments

    I'm back after about a two week vacation. I headed home to visit the fam, see my LLMD, and have some friends visit. Being home was a blast, I got to go to the beach and spend time with 3 of my best friends who came to visit! I also saw my LLMD...

    I'm going to be starting IV antibiotics which probably means less recipe sharing because I won't have the energy or drive like I usually do to make new recipes for you guys. You'll have to bear with me through the next couple months.

    That's all I'm really going to share about that. I'm hoping to have a new recipe for you guys soon, if I find any free time with all this stupid GRE studying!

    Here are some pics from my trip, instead 🙂

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    Lyme Healing Update – Asking the right question

    April 9, 2013 by Victoria Faling 1 Comment

    LLMD Appointment: 3/20/13

    March 21, 2013 by Victoria Faling 4 Comments

    I had what I think was a successful LLMD appointment yesterday afternoon. I spent almost two and a half hours there, some waiting, but good talking.

    I started the appointment off with cognitive testing. This was composed of computer testing to measure reaction time, higher level executive functioning, stuff like that. The first part of the test involved showing you 15 words then it mixed them in with a bunch of other words and when one of the original 15 popped on the screen you had to hit the space bar. They did this with shapes, too. There was some matching and coding stuff, a tap test to identify more reaction time stuff, and then repeated the 15 words/picture test. It only took about 30 minutes.

    Earlier this week I got a call from the doctors office that the doctor I normally see had to move her trip up and was leaving today. I freaked when I got the message because I thought I was going to have to reschedule and I had come from CO so how would I reschedule?! Freakout, get it? Anyway, they said I could see the other doctor instead at the same time so that worked out. The other LLMD where I go is actually the guy who opened the clinic and is very knowledgeable- Lyme is truly his specialty! So I was actually quite excited to meet with him and see what he thought about my treatment and progress.

    I scored pretty well on the cognitive testing but based on how I have been feeling, he believes I have some inflammation in my brain and especially with my cranial nerves. I get mad headaches, blurry vision, can't concentrate or focus, ringing in my ears, and a general swollen feeling in my head. 

    He examined everything I've been taking and tried to figure out which meds I may or may not be responding, too. He went over all my blood work with me and just generally explained everything very thoroughly. He says I have definitely improved but I'm not where I need to be, yet. Well Duh, but it's always good to hear that from a doctor! After years of doctors not getting it he totally does and it is always nice to hear that.

    He started me on a completely new treatment plan. I'll be pulsing 4 different antibiotics and will stop taking all the ones I am currently on. Weeks 1 and 3 I will be taking two antibiotics, weeks 2 and 4 will consist of a different two- one will be taken Monday thru Wednesday and the second one Thursday thru Sunday.

    I'll be starting with half doses until we see how I respond and if I have a herx reaction and how severe. He said he has never tried this specific regimen (the pulsing with these antibiotics in particular) before so I'm a bit of a guinea pig, but I'm hoping it works out! One of the big reasons for doing things this way and monitoring me closely is due to my thyroid. I have Hoshimoto's (autoimmune disorder that attacks my thyroid) and my thyroid levels are currently on the fence. They are fine for now but he said one of the antibiotics can cause major shifting.

    Anyway, all in all a great appointment and I'm so glad I got to meet with him. I'll be having a phone consult with him in 6 weeks to follow up on this new regimen then back to the office to meet with my usual doctor in 12 weeks.

    Fingers crossed this helps bust through my plateau and things start getting better! I'm back to Colorado tomorrow- can't wait!- and hopefully will have time to do some baking this weekend. I have a great recipe I'm planning on cooking up so expect that, as well. And I have a new breakfast pancake recipe I'll be posting soon for you all.

    LLMD Appointment

    November 21, 2012 by Victoria Faling 7 Comments

    Back in the city and it feels good!

    I flew back home on Saturday evening and have been getting lots of sleep and relaxation. It feels wonderful. Minus today when I had to get up an ungodly hour to fight rush hour traffic and get to an early morning appointment with my LLMD. Yuck. BUT, my appointment went well.

    She said I'm doing good, we upped the Mepron and Bactrim doses and adjusted my thyroid dose (specifically the T4... I get a compounded T3/T4 from an apothecary since many common thyroid medications contain gluten). She also told me to get a pelvic ultra-sound since I've been having some... girl problems... to put that lightly. So off to see the you-know-what doctor very soon.

    She is also starting my on Flagyll. I've had stomach issues for YEARS (8 now?) and it hasn't necessarily gotten better. I've had three parasites before, which we thought we had gotten rid of. We're doing some testing to see if we can identify any. But she is starting me on the Flagyll to try and kill anything off that might be there. I'm all for that, I hate getting so bloated it looks like I'm pregnant when I eat. My friends actually have a name for my stomach when it does that (and gets hard as a rock too!)- they call it the Victoria Stomach and freak out when it happens (as in run away and tell me not to get close because it's weird and freaky.... love you to, Ammie!)

    I felt good about this appointment. Normally it sort of just feels like she is throwing medications at me with no rhyme or reason. I understand that with Lyme it is all trial and error but today it just felt she acknowledged the different co-infections and why she was doing everything she was doing. She was going to start me on A-Bart but decided to hold off until we see how I respond to the Mepron dosage and Bactrim and everything else. She knew it was a lot and wants to hold off until we add even more. I'm happy about that because it is starting to feel extremely overwhelming with all the pills and drops and liquids I am taking. But I'm happy she acknowledged that co-infection and that we will get there.

    Overall, descent appointment. I then came home and proceeded to nap. Then I baked a pecan pie for thanksgiving... and ate a large majority of batter. Then napped some more :). Good day.

    THANKSGIVING HERE I COME! GET IN MY BELLY!

    Don't worry, I'll be posting about everything we make for this holiday. If you are America- Happy Thanksgiving, I hope you all have a wonderful holiday! If you aren't American... I hope you are having a wonderful week :)!

    The Current Concoction

    November 14, 2012 by Victoria Faling Leave a Comment

    1. Mepron

    2. Plaquenil

    3. Biaxin

    4. Duricef

    5. Bactrim

    6.Mycostatin

    I'm also taking drops of A-BAB, although thats not a direct antibiotic. I decided to post about the current antibiotics I'm on because 1. It's ridiculous! and 2. I'm curious about if any of you other Lymies have been on or are on any of these and how you have responded? I know everyone is different, I'm just curious.

    Another question for all you Lyme people... So throughout my Lyme research I've heard/seen the term biofilms. Although, I generally get too tired to read about all the science-y stuff because looking at a screen for too long gives me a massive headache (although I can blog no problem of course 😉 ). My doctor hasn't mentioned directly anything about biofilms and I was wondering if any of you could provide me with more information?

    Although I don't currently have a new recipe for you, I just tried PaleoPDX's pumpkin banana spice cookies. Yum :)!

    LLMD Travels

    October 21, 2012 by Victoria Faling 2 Comments

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    Well, I'm back in Colorado after a short but well needed trip to DC. I went home to see my LLMD and got a few days in with family and friends.

    I'll start with the travels, then with the doctors visit. The highlights included hitting up an AWESOME burger joint with my mom. They had gluten free buns and yummy sweet potato fries. I had been seriously craving a burger and sweet potato fries so it really hit the spot.

    The next day I started a new medication and felt extremely nauseous so I spent most of the day relaxing in bed before heading out to dinner with one of my best friends who I hadn't seen in over 6 months! We went out for a yummy dinner (I had mahi mahi over cauliflower and potato gratin with green beans- love heading back to the east coat for some fresh fish!) then headed over to another restaurant that has a great roof top bar for drinks. It was so nice just to catch up and spend the evening outside- it is still humid and warm in DC!

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    I got a chance to see this lovely princess! That's pepper, the laziest dog ever but she's mine so I love her.

    The thing I miss most about the east coast is fall. Fall is my favorite season and it was great to see all the beautiful leaves changing colors! I can't get enough, I hate how short fall is in Colorado. Sorry, I didn't get a great picture.

    So onto the doctor. It went well. Apparently my babesia is what is causing the symptoms I'm having so she gave me some new supplements and anitibiotics to work on killing that bad boy. I have a phone consult in a week to see how I'm feeling and if I'm still having those symptoms she's adding in another antibiotic and upping the dosage. She told me I need to stop toughing things out and call if I'm not feeling well. I'm so used to just dealing with pain and discomfort and toughing things out that I don't call unless I feel like I'm dying. Something to work on...

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    Is it sad that not everything I'm taking is pictured? Yes, I am the oldest person ever, I have TWO giant pill boxes. How else am I supposed to keep track of everything?!

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    One for supplements, one for all the antibiotics. I literally have a whole cupboard JUST for my pills. Plus I took over part of the counter for drops and things that need to be taken mid-day away from other pills.

    I also live out of plastic containers and drink out of my plastic Nalgene constantly (I am in college!). You all already know, and I do too, how bad plastic is for you, but I got called out on for using all of that. Time to switch over! It is messing with my estrogen levels, can exacerbate symptoms, and is all around bad... yeah, yeah, yeah. Got home and ordered an aluminum water bottle ASAP :).

    I flew in last night and it was nice to get back to my apartment, settle in, and see this lovely one...

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    That's Einstein. My roommate and I are taking care of him for a while. He's hilarious! My roomie gave him an old stuffed animal from an ex-boyfriend... He's completely torn it up :).

    I'll have a couple new recipes for you later this week!

    Brownies and Blood Results

    June 13, 2012 by Victoria Faling Leave a Comment

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    What's that? It looks like the last of some really milky coffee, huh?

    Nope. It's heaven. It's the cure for EVERYTHING!

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    My roommate convinced her grandma to let us have the juicer. That my friend, is a ginger shot. Pure joy. You take a giant hunk of ginger, put in the juicer, then down it like a shot. You need a chaser, though, don't doubt that. I usually use orange juice. It helps with stomach aches, headaches, and general blah feeling. Seriously wakes up your senses! Down one of those first thing in the AM and I AM UP. We are genius's 🙂

    On another note, I had a phone consultation with my Lyme specailist this morning who went over my blood results. My IGM and IGG came back negative according to the company, but my doctor said when she looked at it, she read it as positive. They also saw the organisms for Bartonella when they did my Fry Smear- woohoo! RESULTS. My thyroid is low again, so I'm upping my medication for that. My blood sugar levels were also apparently high, so I am to strictly avoid carbs and sweets. Good thing my roommate and I just started our 21 day sugar detox!

    Of course, two days into it we were already craving brownies 😉 So we made a late night run to whole foods for ingredients to make sugar free, paleo brownies. We followed this recipe from Health-bent.com, with a few substitutions. Instead of the sweetner we added about ⅓-1/2 cup applesauce and 2 tbs. coconut flour. I also added in ½ teaspoon of baking powder. Not my favorite recipe... needs tweaking/I like flour based recipes better. Still satisfies the chocolate craving minus the sugar. Added banana and raspberries on top, which helped!

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    I’m Victoria!

    I create delicious and healthier recipes to aid in your healing journey. I believe you can eat and enjoy amazing food that still supports your health. All of my recipes are allergy friendly, so everyone can eat here!

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